Hi everyone,
Out of nowhere in about May 2015 I started becoming incredibly fatigued, abdominal pains, overwhelming urge to go to the toilet, and taking increasing amounts of time to do so every day after eating, and haemorrhaging weight as a result.
Drove myself to insanity trying to think of anything that might have changed and having every test all-clear. May 2016 I finally got admitted to hospital and had an NG tube top help regain weight. I don't know what happened but from the day I was admitted everything seemed to improve...
But there was a man who had been diagnosed with Crohn's, so I pestered him about it, and we tragically bonded over sharing the same symptoms. I was released from hospital in mid August and since discharge it has all restarted exactly as it did initially, getting worse day by day. The difference this time is the year's experience of it so I haven't lost as much weight (yet) but now my body is really shutting down.
I had my calprotectin levels checked which were 49μg (50 is the threshold) but this was weeks after what I believe was a flare-up period. Incidentally lost like 9% bone density of the 2 year period, and vitamin D levels were within healthy range BY 9nm which is inexcusable considering my vitamin D intake. Finally got a gastroenterologist appointment next week and I've written down all my tests and results so I don't get pissed about again. I just want them to listen to me for a change because I get abused and mistreated for being underweight.
I've done everything I can do, so if they can't help, I officially give up.
Look forward to meeting you all!
All my love,
Joey
xxx
Out of nowhere in about May 2015 I started becoming incredibly fatigued, abdominal pains, overwhelming urge to go to the toilet, and taking increasing amounts of time to do so every day after eating, and haemorrhaging weight as a result.
Drove myself to insanity trying to think of anything that might have changed and having every test all-clear. May 2016 I finally got admitted to hospital and had an NG tube top help regain weight. I don't know what happened but from the day I was admitted everything seemed to improve...
But there was a man who had been diagnosed with Crohn's, so I pestered him about it, and we tragically bonded over sharing the same symptoms. I was released from hospital in mid August and since discharge it has all restarted exactly as it did initially, getting worse day by day. The difference this time is the year's experience of it so I haven't lost as much weight (yet) but now my body is really shutting down.
I had my calprotectin levels checked which were 49μg (50 is the threshold) but this was weeks after what I believe was a flare-up period. Incidentally lost like 9% bone density of the 2 year period, and vitamin D levels were within healthy range BY 9nm which is inexcusable considering my vitamin D intake. Finally got a gastroenterologist appointment next week and I've written down all my tests and results so I don't get pissed about again. I just want them to listen to me for a change because I get abused and mistreated for being underweight.
I've done everything I can do, so if they can't help, I officially give up.
Look forward to meeting you all!
All my love,
Joey
xxx