My husband was diagnosed in January and he's been on a rollercoaster since, mostly heading downward unfortunately. He was put on Humira 3 months after diagnosis (started him on steroids and mesalamine but no real improvement), took it for 12 weeks, gave up after a dosage where he took it on the Friday night and felt dreadful the whole weekend long. After a 10 week break from the Humira, he's back on it because he sensed he was getting worse and deemed it worth a second shot.
We're used to travelling to some pretty cool far off and remote places for holidays but this year he's reluctant to even get in a plane to Spain due to the Crohn's. I've been reading forums about preparing to fly etc but really I'm looking for some help with regards to the psychological effects of a diagnosis. He's got it pretty easy compared to some of the stories I read on here and on the Facebook Crohn's pages, but that doesn't help him in the sense that day to day he's still struggling and feels awful.
In an ideal world he'd be fit enough to run 10 miles a day, but he lost so much weight in the initial few months of his first major flare that he's really fatigued and can just about manage a 3 mile walk. It's my dream to get him back to full fitness and eventually on a holiday where he can relax totally, but in the meantime I'm looking for any tips on foodstuffs that might be of use- I make him suped-up protein shakes, made up of foliage (spinach etc), fruit, juice, protein powder and bananas, to hike up his calorie intake but often he can barely stomach a sandwich.
Sorry for the long introduction and the slight tangents, but I just want to make him feel "normal" again!
We're used to travelling to some pretty cool far off and remote places for holidays but this year he's reluctant to even get in a plane to Spain due to the Crohn's. I've been reading forums about preparing to fly etc but really I'm looking for some help with regards to the psychological effects of a diagnosis. He's got it pretty easy compared to some of the stories I read on here and on the Facebook Crohn's pages, but that doesn't help him in the sense that day to day he's still struggling and feels awful.
In an ideal world he'd be fit enough to run 10 miles a day, but he lost so much weight in the initial few months of his first major flare that he's really fatigued and can just about manage a 3 mile walk. It's my dream to get him back to full fitness and eventually on a holiday where he can relax totally, but in the meantime I'm looking for any tips on foodstuffs that might be of use- I make him suped-up protein shakes, made up of foliage (spinach etc), fruit, juice, protein powder and bananas, to hike up his calorie intake but often he can barely stomach a sandwich.
Sorry for the long introduction and the slight tangents, but I just want to make him feel "normal" again!
