Hi everyone, I've been pretty ill over the last 2 months, I've had severe adnominal pain in the upper quadrants of my abdo. I've been prisoned to my house and only just turning a corner.
Let me give you a breif history, I've always had problems with loose muscus bowel movements 10-15 times a time, the docs put it down to IBS, I learnt to live with it and refused several endoscopy's over the years. At the beginning of the year I was admitted to hospital with abdo pain and discharged with suspected pancreatistis. I was placed under a hematology consultant as there were concerns that previous heavy drinking may of caused it. I had a scan which showed a enlarged liver but luckily minimal scarring. Over the months my bowel movement have got more frequent and the tummy pains more frequent. A couple of months ago the pain was getting worse on a daily basis until one evening the pain was so bad my wife called for an ambulance. I was'nt in good shape I had a heart rate of 35 and decreasing and blood pressure through the roof, i remember the crew getting the cardiac arrest drugs ready, I thought my days were numbered. Luckily with the aid of alot of morphine and fluids my heart rate began to raise to 40-50bpm. I was taken into the Resus room at our local hospital (which is 1 hr away) where abdo x rays were taken to ensure there was no perferation, luckily not.
I was stabilised and taken to the Surgical receiving unit. On a previous visit to the doctor I done a stool sample, my pro tectin levels were 151 which I was told was high. Anyway back in the hospital the consultants wanted an endoscopy however could see I was way to ill for one to be performed. I was discharged with pain medication and mebervine.
When I felt a little better I was booked in for the endoscopy, I took the bowel prep (which wiped me out again) and had the endoscopy under sedation. Unfortunetely I had the stand in surgeon doing the endoscopy but was assured he knew what he was doing. Dispite the discomfort the camera managed to get to the terminal ileum. I had several biopsies taken including one from the ileum (I am awaiting results). Strangely enough the surgeon said my colon looked normal despite being bedridden for weeks prior.
My understanding was that the protectin test was designed to replace the endoscopy procedure? Would make sense as the patient is normally to fagile to under go a endoscopy during a flare up (With I believe I had).
I was glad no lumps or bumps were found though.
So here I am still with managable abdo pain awaiting the biopsy results. Cant eat much so having Complan to fill in the gaps. Been trying to eat fish that seem ok and dose'nt hurt like other foods such as boiled new potatoes..ouch!
I've been reading Manuka honey is good for these types of problems.
Another funny thing is I've been getting alot of kidney pain, my doc placed me on strong anti biotics as my bloods showed raised white blood cells. Been feel sick, not being able to do much activity, find it hard to bend down, toilet habit is all over the place at the moment due to the amont of codeine I'm taken for the pains. I'm just mad that the Protectin levels were'nt enough evidence to start some proper treatment during the height of my flare up. I've not read too much about IBD because I'm scared of it. Sorry for going on and excuse the grammar.
Let me give you a breif history, I've always had problems with loose muscus bowel movements 10-15 times a time, the docs put it down to IBS, I learnt to live with it and refused several endoscopy's over the years. At the beginning of the year I was admitted to hospital with abdo pain and discharged with suspected pancreatistis. I was placed under a hematology consultant as there were concerns that previous heavy drinking may of caused it. I had a scan which showed a enlarged liver but luckily minimal scarring. Over the months my bowel movement have got more frequent and the tummy pains more frequent. A couple of months ago the pain was getting worse on a daily basis until one evening the pain was so bad my wife called for an ambulance. I was'nt in good shape I had a heart rate of 35 and decreasing and blood pressure through the roof, i remember the crew getting the cardiac arrest drugs ready, I thought my days were numbered. Luckily with the aid of alot of morphine and fluids my heart rate began to raise to 40-50bpm. I was taken into the Resus room at our local hospital (which is 1 hr away) where abdo x rays were taken to ensure there was no perferation, luckily not.
I was stabilised and taken to the Surgical receiving unit. On a previous visit to the doctor I done a stool sample, my pro tectin levels were 151 which I was told was high. Anyway back in the hospital the consultants wanted an endoscopy however could see I was way to ill for one to be performed. I was discharged with pain medication and mebervine.
When I felt a little better I was booked in for the endoscopy, I took the bowel prep (which wiped me out again) and had the endoscopy under sedation. Unfortunetely I had the stand in surgeon doing the endoscopy but was assured he knew what he was doing. Dispite the discomfort the camera managed to get to the terminal ileum. I had several biopsies taken including one from the ileum (I am awaiting results). Strangely enough the surgeon said my colon looked normal despite being bedridden for weeks prior.
My understanding was that the protectin test was designed to replace the endoscopy procedure? Would make sense as the patient is normally to fagile to under go a endoscopy during a flare up (With I believe I had).
I was glad no lumps or bumps were found though.
So here I am still with managable abdo pain awaiting the biopsy results. Cant eat much so having Complan to fill in the gaps. Been trying to eat fish that seem ok and dose'nt hurt like other foods such as boiled new potatoes..ouch!
I've been reading Manuka honey is good for these types of problems.
Another funny thing is I've been getting alot of kidney pain, my doc placed me on strong anti biotics as my bloods showed raised white blood cells. Been feel sick, not being able to do much activity, find it hard to bend down, toilet habit is all over the place at the moment due to the amont of codeine I'm taken for the pains. I'm just mad that the Protectin levels were'nt enough evidence to start some proper treatment during the height of my flare up. I've not read too much about IBD because I'm scared of it. Sorry for going on and excuse the grammar.