Hi everyone, I am Derek, 26 years old, and live in Orange County, CA. I am a magician entertainer up at the Magic Castle in Hollywood by night, and I am a project manager for one of the cooperate offices of The Home Depot during the day.
Just got out of the hospitable after 31 days. And was told that I have Crohn's. Please excuse my spelling and grammar as I am very highly medicated right now just getting out of the hospital as well as on painkillers.
So, Here is my story of the last month of my life. Hopefully I wont make this too too long of a read.
I first originally noticed that I had a problem because there was blood in my stool for about 4 months. I let it go because I was on a major diet and doing intense weightlifting, Heavyweight training barbell squats and whatnot, I was originally pushing 240 lbs and 6 foot tall. Lost some weight and got down to about 210, and started the weightlifting. So for these months it got worse and worse, More blood in the stool, and finally I said something to my GF and mother, and was taken to an urgent care to see if I had maybe a Hemroid. After the exam he said there were no signs of hemroids, and that I needed to have a colonoscopy. So I went to a GI. and had one done. The results showed that I had Colitis. only in the lower 4-6 inches and it was not that bad. so I was put on a liquid rectal cortozol, and lialda for medication, and a low-fiber diet. This did not seem to stop the bleeding, so I was switched to to prednisone. 3 Months went by, and I ended up feeling like crap though the entire time, and caught the flue, didnt eat for 4 days, couldn't hold anything down, and was miserable. My parents and gf ended up taking me to the hospital, and putting me on fluids due to the dehydration, they then admitted me and got me all hooked up. We got in touch with a new GI and told him what my issues were and he set me up for another colonoscopy. (at this point they had me on so many drugs and painkillers because I was having cramping in my stomach so bad I was screaming in tears) They had me on 2mg of "dilated?" every 4 hours with 7.5/325 percocets inbetween just to manage the pain... after this point it had been a few days in the hospital, and you kinda start to loose track of the days, time, how long etc, so my time frames might be off a little, but ill get the main points across. So come to find out my colitis turned into full blow chrohs which had spread from the very bottom of my insides, all the up my asophus up my throte and into my mouth, the entire thing was eaten up, I had sores all over my mouth to the point where I couldnt swallow or eat. At this point they had put a "pick line?" in me and started to feed me though a tpn bag. along with all the other bags that were hanging on that pump machine.
So I stayed in the hospital and my parents and friends and gf were always crying and I didnt really understand why. Well come to find out from my gf (15 days later) that the doctor told them I only had week to live because my system was completely shut down due to the server auto immune and the flu, I didnt know this the entire time, Well.. obviously I didn't die, but then they were told that I was going to be transferred to ceader hospital so they can remove part of my insides, and I would have to wear a bag on the outside of my body (again, I didnt know any of this at the time, as the doc advised my family to keep me in the dark to minimize stress on myself)
-Im going to try and speed this up.
Well... That didnt happen either, we ended up putting me on Humira injections, and I started to get to the point where I was eating solid foods, was released from the hospital, went home for 3 days, had a fever of 103.00 the entire time, went back to the hospital, got readmitted for another 8 days, found out it was do to some sort of internal infection or something and had me on antibiotics.
Now im back at home again after 7 days. And have no clue what I can and can not eat, They tell me to eat low fiber beacuse of my crohns being so bad, and also my blood sugar is an issue so low carb, No wheat, No oats, No fruit, No veggies, and I was told to eat a lot of white carbs for my GI track, But then was told NOT to each whites because of my blood sugar (I forgot what im taking that affecting my bloodsugar right now)
Im cramping constantly, stools are liquid, up until about 2 days ago, and now they are more.. muddy? I dont know what word to use, and im dropping like 6 pain killers a day just to manage the pain in my stomach, and I get stuck on the toilet with the worst cramps in the world.
Im pretty lost, dont know what to do, what to eat, its only day 7 back and home, and iv been taking it very easy trying not to over stress myself, I seem to get dizzy and light headed when i get up. so rest is key at this point while im recovering from the hospital.
Anyway. That's my intro..
Im sure ill be asking questions here and there as things arise.
-Derek
Just got out of the hospitable after 31 days. And was told that I have Crohn's. Please excuse my spelling and grammar as I am very highly medicated right now just getting out of the hospital as well as on painkillers.
So, Here is my story of the last month of my life. Hopefully I wont make this too too long of a read.
I first originally noticed that I had a problem because there was blood in my stool for about 4 months. I let it go because I was on a major diet and doing intense weightlifting, Heavyweight training barbell squats and whatnot, I was originally pushing 240 lbs and 6 foot tall. Lost some weight and got down to about 210, and started the weightlifting. So for these months it got worse and worse, More blood in the stool, and finally I said something to my GF and mother, and was taken to an urgent care to see if I had maybe a Hemroid. After the exam he said there were no signs of hemroids, and that I needed to have a colonoscopy. So I went to a GI. and had one done. The results showed that I had Colitis. only in the lower 4-6 inches and it was not that bad. so I was put on a liquid rectal cortozol, and lialda for medication, and a low-fiber diet. This did not seem to stop the bleeding, so I was switched to to prednisone. 3 Months went by, and I ended up feeling like crap though the entire time, and caught the flue, didnt eat for 4 days, couldn't hold anything down, and was miserable. My parents and gf ended up taking me to the hospital, and putting me on fluids due to the dehydration, they then admitted me and got me all hooked up. We got in touch with a new GI and told him what my issues were and he set me up for another colonoscopy. (at this point they had me on so many drugs and painkillers because I was having cramping in my stomach so bad I was screaming in tears) They had me on 2mg of "dilated?" every 4 hours with 7.5/325 percocets inbetween just to manage the pain... after this point it had been a few days in the hospital, and you kinda start to loose track of the days, time, how long etc, so my time frames might be off a little, but ill get the main points across. So come to find out my colitis turned into full blow chrohs which had spread from the very bottom of my insides, all the up my asophus up my throte and into my mouth, the entire thing was eaten up, I had sores all over my mouth to the point where I couldnt swallow or eat. At this point they had put a "pick line?" in me and started to feed me though a tpn bag. along with all the other bags that were hanging on that pump machine.
So I stayed in the hospital and my parents and friends and gf were always crying and I didnt really understand why. Well come to find out from my gf (15 days later) that the doctor told them I only had week to live because my system was completely shut down due to the server auto immune and the flu, I didnt know this the entire time, Well.. obviously I didn't die, but then they were told that I was going to be transferred to ceader hospital so they can remove part of my insides, and I would have to wear a bag on the outside of my body (again, I didnt know any of this at the time, as the doc advised my family to keep me in the dark to minimize stress on myself)
-Im going to try and speed this up.
Well... That didnt happen either, we ended up putting me on Humira injections, and I started to get to the point where I was eating solid foods, was released from the hospital, went home for 3 days, had a fever of 103.00 the entire time, went back to the hospital, got readmitted for another 8 days, found out it was do to some sort of internal infection or something and had me on antibiotics.
Now im back at home again after 7 days. And have no clue what I can and can not eat, They tell me to eat low fiber beacuse of my crohns being so bad, and also my blood sugar is an issue so low carb, No wheat, No oats, No fruit, No veggies, and I was told to eat a lot of white carbs for my GI track, But then was told NOT to each whites because of my blood sugar (I forgot what im taking that affecting my bloodsugar right now)
Im cramping constantly, stools are liquid, up until about 2 days ago, and now they are more.. muddy? I dont know what word to use, and im dropping like 6 pain killers a day just to manage the pain in my stomach, and I get stuck on the toilet with the worst cramps in the world.
Im pretty lost, dont know what to do, what to eat, its only day 7 back and home, and iv been taking it very easy trying not to over stress myself, I seem to get dizzy and light headed when i get up. so rest is key at this point while im recovering from the hospital.
Anyway. That's my intro..
Im sure ill be asking questions here and there as things arise.
-Derek