Hey hey,
My name is Laura and I'm a 26/F. I just got diagnosed and I'm broken to say the least.
I hope everyone is well and not hurting today. It's like the title says, for a year I started having so many stomach problems. I tried gluten free, dairy free, FODMAPS and even fasting to try and figure out what had been causing my constant need to be in the bathroom and the pain as well.
I had so many tests done, ultrasounds on my vital organs, blood tests, stool tests etc. And they all came back negative. Until one day after being dosed with a cocktail of antibiotics for possible SIBO, parasites, etc I did a stool test and got c.diff.
It reoccured for me 3 times and after finally testing negative two times by EIA and once by PCR. The GI decided something else was going on and had me do a PillCam endoscopy. I had already completed a colonoscopy and endoscopy that came back clean before c.diff and my diagnosis of Crohn's.
It's been a crazy ride. I've lost more than a year of my life and now I feel like the diagnosis is some type of death sentence. I was put on Imuran 50mg and I'm terrified to be on these drugs. I'm honestly scared I don't/won't have much life left in me but decided to look for support because I've never been so down. My thing in life has always been health and I used to be in the gym everyday before my stomach revved up.
Nobody else in my family has had (that we know of) Crohn's. And the doctor was blaming c.diff.
My name is Laura and I'm a 26/F. I just got diagnosed and I'm broken to say the least.
I hope everyone is well and not hurting today. It's like the title says, for a year I started having so many stomach problems. I tried gluten free, dairy free, FODMAPS and even fasting to try and figure out what had been causing my constant need to be in the bathroom and the pain as well.
I had so many tests done, ultrasounds on my vital organs, blood tests, stool tests etc. And they all came back negative. Until one day after being dosed with a cocktail of antibiotics for possible SIBO, parasites, etc I did a stool test and got c.diff.
It reoccured for me 3 times and after finally testing negative two times by EIA and once by PCR. The GI decided something else was going on and had me do a PillCam endoscopy. I had already completed a colonoscopy and endoscopy that came back clean before c.diff and my diagnosis of Crohn's.
It's been a crazy ride. I've lost more than a year of my life and now I feel like the diagnosis is some type of death sentence. I was put on Imuran 50mg and I'm terrified to be on these drugs. I'm honestly scared I don't/won't have much life left in me but decided to look for support because I've never been so down. My thing in life has always been health and I used to be in the gym everyday before my stomach revved up.
Nobody else in my family has had (that we know of) Crohn's. And the doctor was blaming c.diff.