Hi everyone i have just joined. My Name is Adam i think a few people may already know me from on of the FB support groups. (In the UK)
For those who don't know me, I am 28 years old have had Ulcerative Colitis since i was 12 and currently in the worse flare of my life. I am also a Specialist Nurse Advisor in Occupational Health, I specialise in Occupational Health Law, Chronic disease management and Equality. I have just quite my job after 6 months sick after my manager told me my disease was in my head. I am completing a Masters in IBD to become an IBD specialist if this flare settles i will finish it.
So my story my flare started in Mayish 13 had a rubbish dr at the time which resulted in me going to another A/E and refusing to leave until another Consultant took me on which they did. By this time I was so poorly my GI in August didn't think I would survive and surgery was not an option as my blood was incredibly toxic and I would have not survived. She gave me Remicade as a last resort but didn't think it would work. Fortunately it worked wonders, had a scope in Oct she said if she didn't know I had UC she could not tell. So was ready to go back to work couple of more weeks rest was the plan. But my manager had other plans, lets just say it ended up with me suing for harassment long story short I quit this week after what she said. All the stress brought the flare back on in December and I am now in a moderate flare, taking Aza, Pentasa and Saloflak Supposorties, currently waiting to join a new clinical trial. Also have severe arthritis and poor pain control but i am seeing a pain specialist in a few weeks. Because of the toxicity I have been left with a lot of problems from damage, also because my previous dr never checked my bloods i ended up in Liver Failure too this year caused by Aza. It is getting better very slowly was very close to going on the transplant list. Any way I'm sure you are all bored now. So i will shush with my melodramatic story lol.
My whole reason for joining is not so much for myself but well maybe a little as I feel incredibly lonely at the mo. But am looking to help other ibd peeps mostly, I am going to ask one of your lovely admins to join the medical board.
Hope this is the start of a few new friends, thanks for reading.
For those who don't know me, I am 28 years old have had Ulcerative Colitis since i was 12 and currently in the worse flare of my life. I am also a Specialist Nurse Advisor in Occupational Health, I specialise in Occupational Health Law, Chronic disease management and Equality. I have just quite my job after 6 months sick after my manager told me my disease was in my head. I am completing a Masters in IBD to become an IBD specialist if this flare settles i will finish it.
So my story my flare started in Mayish 13 had a rubbish dr at the time which resulted in me going to another A/E and refusing to leave until another Consultant took me on which they did. By this time I was so poorly my GI in August didn't think I would survive and surgery was not an option as my blood was incredibly toxic and I would have not survived. She gave me Remicade as a last resort but didn't think it would work. Fortunately it worked wonders, had a scope in Oct she said if she didn't know I had UC she could not tell. So was ready to go back to work couple of more weeks rest was the plan. But my manager had other plans, lets just say it ended up with me suing for harassment long story short I quit this week after what she said. All the stress brought the flare back on in December and I am now in a moderate flare, taking Aza, Pentasa and Saloflak Supposorties, currently waiting to join a new clinical trial. Also have severe arthritis and poor pain control but i am seeing a pain specialist in a few weeks. Because of the toxicity I have been left with a lot of problems from damage, also because my previous dr never checked my bloods i ended up in Liver Failure too this year caused by Aza. It is getting better very slowly was very close to going on the transplant list. Any way I'm sure you are all bored now. So i will shush with my melodramatic story lol.
My whole reason for joining is not so much for myself but well maybe a little as I feel incredibly lonely at the mo. But am looking to help other ibd peeps mostly, I am going to ask one of your lovely admins to join the medical board.
Hope this is the start of a few new friends, thanks for reading.
