Maybe the whole "I'm looking for advice" thing was just glossed over or not understood ? Let me try again, I am tired of having this, I want to be aggressive about getting something done now that I can.
I am looking for advice.
I will add my rant here instead of a link, a little edited down, looking for thoughts on what people think it is and advice.
About seven years ago, I got put out of work because of chronic sciatica, nothing to do with whats here right ? Maybe, but probably wrong. Just a little later I got an infection ( I was prescribed vic's for the previous issue, never took them, never even filled it ) epididymitis, which I was given vics again, this time I did take them, as well as the antibiotics. I also had had "stomach" issues for years, which I had always just waved off. These, for whatever reason also came much more to the for front when I got first laid up, with a "back" issue.
As it turns out, the vic's were my salvation when confronted with all three issues. Now, later, I got an infection again, ER checked me out, had me come back in after the antibiotic treatment was done. Turns out I have chronic prostatitis as well, and this is what causes me to get these infections so frequently now. I have the "unknown" cause kind, its not viral, its been seven years now and no steroids or antibiotic treatment has worked.
Through the course of this, I lost my coverage, I was never big on going to doctors before these issues anyways. I can count on my fingers the time I had since I was 18 until this all started when I was 37. I have had stomach issues since my teens, I just always waved them off.
Well, I am now waiting for disability and on was on GPA, which wouldn't cover my getting tested for Crohns or IBS ( or really anything besides a primary and scripts for that matter, as I would later find out ) which is what my primary doctor is 99& sure I have a severe case of one of them. She snuck me on some of the steroid and other treatments to see if they would help, no joy. The only thing that gave me any relief was the vic's. So we worked out a schedule with them that worked for me, which on paper is 8 a day. In reality, some days I took very little, on bad days I could take up to 12 though. In comes the FDA and PROP people like you, which cut what I could take in a month by a third.
My primary then wrote my scipt as must last 30 days and was going to send me to a pain clinic so I could get the amount I was already taking. Me, thinking I was smart went and looked up stuff online, and saw she could write me three scripts in 90 days time, so I ignored her and took them as normal, figuring I would be in a pain clinic soon enough.
Turns out GPA didn't cover that either. This got me in hot water with my primary for not listening, and added a danger of addiction note to my medical records......... She had offered to send me to a pain clinic in the past to get on Schedule two, also mentioned MJ was becoming legal as an option...... I turned down both, this was before the R.I. laws changed, does that sound like an addict or someone wanting to get high ? I turned down an offer to get on oxy.............
During this, over a year ago, GPA was phased out, so I couldn't get back on that, but my Obamacare app kept hanging up in the works............ No doctor at all................. No meds, no nothing, even though because I outsmarted" myself, I wasn't on vics anymore..........
Wound up in the hospital for kidney stones ( this just to top my hell off I guess, although I knew they were and are still coming as I had already been told my kidneys were calcified years earlier, just took awhile and I think I have passed a couple before, just not this severe/size ). There a navigator did what my case worker and myself had failed to do all these months, actually get my med app through. They had kept "losing" my paper work before this. This time she faxed it in, and verified with one of them they received it. Even with this, they "lost" it again, but this time she was there to raise holy hell over it since she had verified it with them and she is a navigator that works for Kent, but not them.
Now, for the past year + my life has been a living hell, I would literally rather die than know I have to face life with this pain forever. My coverage this time does cover specialists, so I will hopefully finally know what my stomach/abdomen issues are. My other two issues are for life though. I have changed primary's because I lost my transportation, so with my old ones notation, that won't look good I assume.
Now, listen to me, I don't want to be on schedule two drugs, still, to this day. I don't want to be "doped" up. I don't want to be on MJ, even though its legal, I don't want to be high, I just want the pain gone, or more accurately, a sense of relief from it. Vic's at my old dosage do all of that. But because of people like you I am fearful this still won't happen. My God, we put dogs to sleep when in misery, why can't we with us as well if you wish to offer no relief, just suffering ? Its people like you that have turned my life into a living hell. Just realise this please when you wake up and look in a mirror. I am not an addict, I can't even imagine being "high" on vic's, they make me drowsy sometimes, that is all. I can deal with being "drowsy" sometimes. I don't want to be "high" which is all the other options offer. Vic's bad side effects ? Believe it or not, they help with my passing "mud", they actually in my case regulate me instead of constipate.
Before you try to say something like, "You talk like an addict", realize this, its been over a year, I haven't had one, just a life of suffering and hell. When I was put in the hospital again, the ER gave me a one day supply, and told me to get a script from my primary. Took two weeks for that wonderful lady at Kent to get my coverage through, so yeah....... Also lost my transportation, so I am now at Coventry CCAP, since my 65 year old mother can drive me there...... And they are waiting om my records from my old primary, even though most of this is documented at Kent and R.I. hospital through the past seven years, which is how my first primary started treating me to begin with, things they have instant access to.
All of this for them to "maybe" send me to a pain clinic just to get a schedule three because of people like you, and I fear even that not happening since CCAP are PROP supporters.