Honking pissed!

[Ckt]

Ok..needing to vent!i just got copies of my records from my gi doctor because I wanted a referral to a colorectal surgeon. I'm a nurse so can interpret data pretty well. My labs are and have always been normal..always. But my colonoscopy showed crypt abscesses and moderately active crohns in the terminal ileum. She told me I had 'very mild crohns disease'..WTH??! And I continue with pain pain pain and constant diarrhea.this was after two Iv courses of steroids and two months on oral steroids with humira. Me thinks there is a problem!!): she continues to minimize my symptoms and also 'diagnosed' me with anxiety disorder. Cute. Given no mental health professional has ever diagnosed me with that and I see a therapist and have for 8 years.and had a recent eval from a psychiatrist for a pain mgmt screening. I have depression which is well managed on cymbalta. Grr!!
I'm glad I'm going to a colorectal surgeon here and an IBD specialist in another city. I'm so done poke me with a fork!!:voodoo:

 

[Ckt]

Gawd..I feel like all I do is come here and gripe!I'm sorry if I come across that way..I'm just at a loss of what to do now.

 

[KazT17]

Ah Ckt what a nightmare. It is hard when the docs are not on your side - I have been there.

Just got to say I have had a chuckle at the phrases you use. ' honking pissed' and ' so done poke me with a fork'. Had to tell my hubby.

Keep your head up and good look with the surgeon and new specialist xxx

 

[D Bergy]

They work for you. Don't hold on to a bad specialist. They are too expensive to keep around if they are not doing the job for you.

I have been through a dozen doctors. They have to know more than myself, or they are not going to be of any use to me.

Dan

 

[Earnellzwifey]

I agree with the masses. I too see a lot of Dr.s. I have a total of 10 specialist or what I call my ologist, and a GP. I have had some real quacks back in the day. I live in Mississippi and well trained Dr.s just don't practice here. they make so much more money elsewhere. You almost feel like the princess that had to kiss a few frogs before she found her prince. I am not even sure if I have found him yet, still testing out the one i'm with now.

Keep seeking, don't give up, fight for your health. You know if something is wrong or not.

 

[Ckt]

Thanks everyone!i actually had to be admitted to the hospital and stayed for 4 days. I went to a different er and they actually listened!i also was under the care of a new dr who is a colorectal surgeon and oddly also medically manages IBD. He seems pretty good but my trust level is still low so I'm going to my appointment in Chicago to a leading ibd specialist there in a week.
Turns out I was in a flare up AND passing kidney stones. Lovely!but theh passed and the flare up is settling down some..
I've learned that I have to be my own advocate..no one else will fight for my well being like I can!!

 

[spingirl]

I agree - you pay them you should not settle. I am trying to decide myself about changing from dr I've had since 1985 and one I think can better treat me. I really should trust my instincts...but its hard. I know. I never knew how bad off I was either. I am honking pissed too. I would have tried to take better care of my self if I had known what my future held. Time to move on...I guess. Take care. I agree - nobody will fight for you. Its just so sad that we all have to work so hard at this!!! I also think every doctor and nurse working in the GI unit should have to take at least one colonoscopy for their schooling!!!