Hope you feel better real soon.I haven't posted here in years either. Wandered here because I am in such excruciating pain today. Ironic since I just started with a new gastroenterologist this week. Bad cramps like I haven't had for ages. Oh well, this will pass...no pun intended. Back to working on banking and income tax. Oh, maybe that's why I feel so sick, lol.
Have a great day everyone. Hope you are all pain free!
Your dog photo made me happy today !
Have a great day everyone. Hope you are all pain free!
I would probably call your gi and tell him what is going on. Let us know what is going on.Not sure what is going on. I have been doing well in the two years since I have been diagnosed. On Humira and 6mp, amitriptyline and immodium. My gastro moved away, just met my new one. All of a sudden, the last few weeks have been off and on pain/bloating and severe discomfort. Is this what happens when one or more of the meds stops working? I am doubled over here...have been all day. Thank goodness for snow days off!
Hope you are better soon, LyndaBummer, I was so tired today that I slept off and on for 6 hours. I have laundry to wash which means I must drive to a laundromat and this must be done on Sunday or Monday. My Colonoscopy prep is Tuesday and my colonoscopy and endoscopy are on Wednesday. Does this ever happen to you, where you have to sleep during the day because you are so tired? I know that I spent all night at the emergency room on Wednesday so maybe today is the day to catch up with my sleep. It is 7 p.m. right now and I'm still super tired. I've only been able to eat liquids for almost 3 weeks and that is getting so boring and so icky and one night I had a dream about food because in real life I was so hungry. Have a good weekend.
For acid reflux I take Pantoprazole ( Protonics) a prescription pill one pill every morning. I have been taking Pantoprazole for years and it helps control my GERD very well. Recently I have had a bit more heartburn and acid reflux, so I also take Extra Strengrh Gaviscon chewable tablets during the day. This combination seems to work for me. But I also make sure I eat small meals instead of big meals, I no longer drink coffee, orange juice is a no-no ( as well as pasta sauce) and I never lay down or recline after eating.Does anyone have a medicine for when they are not feeling well. Gaviscon doesn't do anything for me. My Crohn's disease medicines are Lialda, entyvio and imuran.
ThanksLynda, try drinking Ensure Complete. All other varieties of Ensure have carageenan which is supposed to be bad for anyone.
My nutritionist had me put soup in a blender to make it easier to digest and worked when I was in the deeper part of my flare than I'm in now.I saw my GI on April 24. The scale showed I only lost 3 pounds since my last visit. During my appointment he said "you aren't wasting away or anything." I was not offended by that. I weigh 181 pounds, so if any of my new medications make me nauseated / vomiting and I lost weight then I wouldn't ever be underweight since I already should weigh way less than 181 pounds for my short stature of 5'1".
Solid food has not been agreeing with my gut for a while now, so have been drinking 6 Ensure drinks a day at 220 calories each ! ( I will mention the Ensure Drinks to him on March 11th when I see him again. ) This is surely the reason for me not losing a massive amount of weight due to my symptoms the past 3 months ( or longer.)
I just ate a half of a plain bagel with plain cream cheese on it, so I will see what my gut says about that ! I am not going to buy solid food anymore because I try it out, it doesn't agree with me and I throw that food away ( wasting money. )
I will buy liquid foods and soft foods only. Back to making my smoothies too, which I love to drink once a day ( my sister bought me a new Nutribullet "extractor." ) I use my smoothie as a meal replacement, it has a combination of ingredients in it.
Tired today and talking too much.
Yuck, now checking my poop every day because my GI asks me questions about my poop at every appointment with him.
Take Care. Hope you are feeling good.
I have had diarrhea for years. Using Cottonelle Wipes ( they are like wet baby wipes, but they are for adults ) really feels better than plain toilet tissue. And those Preparation H Medicated Wipes are even better if I am in the bathroom a lot, because these wipes contain witch hazel, which is very cooling to that area of the body.I am better now but last night and this morning i was spending a lot of time in the bathroom.
Lynda,The Humira Nurse Ambassador lady was just here at my apartment to talk to me about Humira and the forms for me to fill out and faxing and what I need to do and what my doctor needs to fill out.
I had to take an anxiety pill while she was here .
It is a "patient assistance foundation" that will pay for my Humira. It's an easy process that still makes me nervous, I have a hard time focusing, concentrating and remembering things ( sigh. ) The nurse lady was nice.
Anyhow my last blood test and x-ray ( to check for TB and hepatitis? ) just got received at my doctors office. After my doctor reads those results he will decide what dose I should be getting and he will contact my Health Insurance Company for the Humira Pre-Authorization process. So, my Humira has not been approved by my health insurance company yet.
Once everything is approved and all my paperwork and my doctors paperwork is sent to the patient assistance foundation then the nurse will come back to my apt. She will show me about the injections and probably will do the first 4 shots then. ( ? ) The Humira medicine would be sent to me via mail order from a speciality pharmacy ?
Now I have a headache .
My Gastroenterologists office is as good one. I like my doctor and his medical assistants. If a doctor is gonna put a scope up my butt then I want him to be a good doctor that I can trust .
Well, I have booklets to read and information to collect now. This nurse lady will be monitoring me the first 5 months ( ? )
God I'm tired.
hi my son having light cramps 2 or r 3 not painful its like pressure for short time after 2 hours of eating and then immediately burps , he did colonoscopy on march which showing very active inflammation , the doctor increases imuran dose and add cortament mmx , before 2 weeks he has many cramps and slight fever and runny nose and some dizziness , he took zithromax anti biotic to 3 days and all symptoms disappeared except what I mentioned above any idea
he is also taking modulen 3 shakes daily
I am really amazed that I am still alive. A lot of things that have happened with me during the past 12 years could have gone even worse than they did. I truly believe there are angels watching over me. I know they are there.Try not to get too worked up, maybe there is a solution you haven't thought of yet. Stress certainly is a bad thing, I pray you are able to afford the things you need, Lynda. Don't be ashamed to go to the food bank once in a while if you need to, I would. I have donated lots of things to charity when I was working, so I don't see the shame in it. I hope you feel better soon.