These are some of the questions I ask my doctors whenever something new comes up & I write them down so I don't forget:
What was found on the tests exactly?
Are any more tests needed now or down the road?
What is the next step to get things under control? IV infusions (remicade), pills--Entocort, 6MP) or injections-Humira
If I develop any serious side effects should I call you first or head to the ER??
If I need to see you if symptoms get very bad, am I able to get in to see you the next day or would I have to wait weeks?
How soon do you return a patient's call if they are having health issues?
Are there any restrictions with work, diet exercise?
Can I have a script so I can meet with a dietician to learn what foods are gut friendly? (FYI Rygon: dieticians have several years of experience in working with many different types of illnesses such as diabetes, heart disease, IBD, etc. and the special dietary needs that go with it. I've met with one many times whenever I'd flare and needed to relearn what was easy on the gut).
May I have something for pain (FYI: patients have that right to be made comfortable when flaring) because I am not able to function daily. If your GI won't give pain medication, talk to your primary MD.
Will you be keeping my other doctors (If you have several like I do) in the loop so if they change my care plan, it won't interfere with my Crohn's treatment? If he doesn't, ask that he does.
Hope this helps Rygon. ((hugs)) GW