How long did it take for people here to accept the diagnosis of crohns?
I was diagnosed a year ago, severe case of crohn's disease. My brother has had crohn's disease for the last five years. He never achieved remission, he is in a daily/constant struggle. He is severely disabled under the care of my older parents, it's a large tension in the family. Always been very hard for me to accept his diagnosis, accept the way it has changed the family. Here I am, now I have the same disease as him. I have been obsessed with going a different route from him, I spent 4 months on bedrest when I first was diagnosed, but Humira brought me into remission very quickly.
My obsession with being ok, and living my life has left me in a difficult spot. I think I have spent so much time telling people that crohns is "no big deal" that it's hard for me to accept that this is serious. I am beginning medication for chronic migraines, those are probably a result of Humira or maybe just the disease itself? I am doing a follow up double scope next week. In a lot of ways it is very shocking to me that I have to do so many doctors appointments every week. I wouldn't wish the frustration of pharmacies, (rite aid and acreedo), delivered medication, doctors offices, and colonoscopy preps on anyone.
This month I quit smoking, which was the last thing I held onto from before I was sick. It made me feel young, and healthy. Connected to my friends. I could always feel like, "well I might be sick, but I'm not that sick, because I still smoke cigarettes". Quit drinking, half the time I puke from one drink anyways.
I can't really believe this is me. How can I relate to anyone? Who would want to be around a chronically ill person? The more I'm moving forward in my life, the more lost I am feeling. I feel like a freak, I'm scared and so embarrassed to tell people my illness. Both because crohn's is not particularly nice, but also I do not want to be the sick person.
I am 23 years old, finishing my last semester of my BFA. I live on the west coast, my family is in the midwest. I just moved in with my boyfriend, and we're planning to move to NYC in January after I'm out of school. I want to be a normal person, but I don't know if that is possible. My brother has never been able to achieve remission, and even though I did, I still struggle with side effects and so much fatigue.
How do people hold full time jobs? I have doctors appointments so frequently, and I'm sick so often! How do you relate to your friends? How do you filter your words with friends? I don't want to be -the- sick person. I resent myself so much for putting this all on my boyfriend, why would he want to be with me?
Sorry so much information. I'm really interested in people with crohns who are able to be functional and lead busy lives. How do you handle it? How do you relate to other people? How do you accept yourself?
I was diagnosed a year ago, severe case of crohn's disease. My brother has had crohn's disease for the last five years. He never achieved remission, he is in a daily/constant struggle. He is severely disabled under the care of my older parents, it's a large tension in the family. Always been very hard for me to accept his diagnosis, accept the way it has changed the family. Here I am, now I have the same disease as him. I have been obsessed with going a different route from him, I spent 4 months on bedrest when I first was diagnosed, but Humira brought me into remission very quickly.
My obsession with being ok, and living my life has left me in a difficult spot. I think I have spent so much time telling people that crohns is "no big deal" that it's hard for me to accept that this is serious. I am beginning medication for chronic migraines, those are probably a result of Humira or maybe just the disease itself? I am doing a follow up double scope next week. In a lot of ways it is very shocking to me that I have to do so many doctors appointments every week. I wouldn't wish the frustration of pharmacies, (rite aid and acreedo), delivered medication, doctors offices, and colonoscopy preps on anyone.
This month I quit smoking, which was the last thing I held onto from before I was sick. It made me feel young, and healthy. Connected to my friends. I could always feel like, "well I might be sick, but I'm not that sick, because I still smoke cigarettes". Quit drinking, half the time I puke from one drink anyways.
I can't really believe this is me. How can I relate to anyone? Who would want to be around a chronically ill person? The more I'm moving forward in my life, the more lost I am feeling. I feel like a freak, I'm scared and so embarrassed to tell people my illness. Both because crohn's is not particularly nice, but also I do not want to be the sick person.
I am 23 years old, finishing my last semester of my BFA. I live on the west coast, my family is in the midwest. I just moved in with my boyfriend, and we're planning to move to NYC in January after I'm out of school. I want to be a normal person, but I don't know if that is possible. My brother has never been able to achieve remission, and even though I did, I still struggle with side effects and so much fatigue.
How do people hold full time jobs? I have doctors appointments so frequently, and I'm sick so often! How do you relate to your friends? How do you filter your words with friends? I don't want to be -the- sick person. I resent myself so much for putting this all on my boyfriend, why would he want to be with me?
Sorry so much information. I'm really interested in people with crohns who are able to be functional and lead busy lives. How do you handle it? How do you relate to other people? How do you accept yourself?
