Hello fellows!
I appreciate the words and responses this last week while I was in the hospital. I always thought these things were kind of jenky but now I see how support forums can really be good for the soul and healing.
There is comfort in knowing you are not alone in this, and with it being a disease that people cant see it is hard to translate to the 'norms' what and how bad this really is-so again, thank you for opening my eyes.
My question for others is how long after a BAD flare and hospital stay did you find it took you to regain your strength again?
My body did not respond to the solumedrol for 9 days in hospital and currently waiting on a stelara infusion this week...
Im just so weak, my muscles cramp, im exhausted just talking on the phone. I know it will take time of course but what could I be doing to help myself or do I let my body heal as it wants?
Thanks guys
-M
I appreciate the words and responses this last week while I was in the hospital. I always thought these things were kind of jenky but now I see how support forums can really be good for the soul and healing.
There is comfort in knowing you are not alone in this, and with it being a disease that people cant see it is hard to translate to the 'norms' what and how bad this really is-so again, thank you for opening my eyes.
My question for others is how long after a BAD flare and hospital stay did you find it took you to regain your strength again?
My body did not respond to the solumedrol for 9 days in hospital and currently waiting on a stelara infusion this week...
Im just so weak, my muscles cramp, im exhausted just talking on the phone. I know it will take time of course but what could I be doing to help myself or do I let my body heal as it wants?
Thanks guys
-M