It's lovely topic, I know...but I am not your typical crohns patient...I don't have the big D, normally. I have pain when flaring, and some canker sores. I get anemic, and I have low B12 so I am often tired and ran down.
My issues get complicated because I am currently not being treated, and I am in the middle of switching GI's. I was on Remicade, but it freaked me out and now I am off and just kinda hoping this disease goes away. I've never had major issues with running to the bathroom, and I have never been hospitalized so it is almost like I can ignore it so it's easy for me to say no to drugs...lol
I am having small BM's, feeling an urgency to go and not much comes out. I am flaring, I think. That's the thing, I am never really certain if I am flaring or not. I get crampy, and that's about it. I have had several colonoscopies, have been on many meds, and I hate it...I can't tell you how much I hate it. i feel normal 80% of the time, on or off meds so it is easy for me to ignore it...like I said. Anyhow, do you think I should be flipping out? Is there anything I can do in the meantime (waiting on a call back from new GI) I know i am being irresponsible, neglecting my health a bit. I don't have a major amount of support, no one really gets it (fam/friends) So I don't talk to anyone at all about it. Can anyone relate?
Thanks so much all!
My issues get complicated because I am currently not being treated, and I am in the middle of switching GI's. I was on Remicade, but it freaked me out and now I am off and just kinda hoping this disease goes away. I've never had major issues with running to the bathroom, and I have never been hospitalized so it is almost like I can ignore it so it's easy for me to say no to drugs...lol
I am having small BM's, feeling an urgency to go and not much comes out. I am flaring, I think. That's the thing, I am never really certain if I am flaring or not. I get crampy, and that's about it. I have had several colonoscopies, have been on many meds, and I hate it...I can't tell you how much I hate it. i feel normal 80% of the time, on or off meds so it is easy for me to ignore it...like I said. Anyhow, do you think I should be flipping out? Is there anything I can do in the meantime (waiting on a call back from new GI) I know i am being irresponsible, neglecting my health a bit. I don't have a major amount of support, no one really gets it (fam/friends) So I don't talk to anyone at all about it. Can anyone relate?
Thanks so much all!