J
Jonny
Guest
Anyone that doesnt know i have had a ileostomy for just over 3 years now.Might be permanent but ive still got my rectum so it could be reversed although the longer i have this peri anal fistula the further away it is for me to get a J-pouch reversal for myself.
Ive had my fistula for 2 years now so i had a year of just dealing and getting used to the stoma before the bum problems set in.I long for the day when i dont have to clean my butt regularly lol and clean the fistula.
As for having a baggie ive been lucky and never had any major problems with it apart from the occasional leaks at inappropiate times so im thankful for that and when i flare up the flares are never as bad as they where without the ileostomy.
For me i dont like having the stoma but very much appreciate that it has made my life better and i can do pretty much the stuff i done before i had it.
Im due for another remicade infusion on the 11th of July so hopefully this will keep my crohns under control for a while, while i wait for the azathioprine to kick in.Ive been on it a few weeks but it can take upto 3 months before it works.
Emotionally i get the odd day when i hate the state of my body and wonder if things will ever improve for me but thankfully those days are rare and it helps being on this site to see positive people and the humour by people even though they have to deal with so much crap.
My bum is the major pain in the ass prob for me.I get blood discharge from my rectum 3 to 4 times a day when i go too the loo and then theres treating the fistula.I can dehydrate pretty easily too which causes me fatigue and i try to eat healthy but i always give in to the temptation of the occasional chips and burgers or a KFC .I dont like cooking too much lol.
Bored you all enough so hoping someone else can share how they are right now and mabye a bit about themseleves too.
Ive had my fistula for 2 years now so i had a year of just dealing and getting used to the stoma before the bum problems set in.I long for the day when i dont have to clean my butt regularly lol and clean the fistula.
As for having a baggie ive been lucky and never had any major problems with it apart from the occasional leaks at inappropiate times so im thankful for that and when i flare up the flares are never as bad as they where without the ileostomy.
For me i dont like having the stoma but very much appreciate that it has made my life better and i can do pretty much the stuff i done before i had it.
Im due for another remicade infusion on the 11th of July so hopefully this will keep my crohns under control for a while, while i wait for the azathioprine to kick in.Ive been on it a few weeks but it can take upto 3 months before it works.
Emotionally i get the odd day when i hate the state of my body and wonder if things will ever improve for me but thankfully those days are rare and it helps being on this site to see positive people and the humour by people even though they have to deal with so much crap.
My bum is the major pain in the ass prob for me.I get blood discharge from my rectum 3 to 4 times a day when i go too the loo and then theres treating the fistula.I can dehydrate pretty easily too which causes me fatigue and i try to eat healthy but i always give in to the temptation of the occasional chips and burgers or a KFC .I dont like cooking too much lol.
Bored you all enough so hoping someone else can share how they are right now and mabye a bit about themseleves too.