So I got diagnosed with Crohns Disease of the Terminal Ileum back in May.
I was placed on Budesonide for 3 months and also Azathioprine as a maintenance medication.
The problem is that I have had continued pain and everything that goes along with it. Ongoing inflammation was even recently shown on my MRE.
My specialist is encouraging me to stay on Azathioprine (despite me having side effects from it) and we have also been talking about surgery for the previous few months.
Today when I saw him again, he gave me a referral to a surgeon but said that I'm not dying and don't LOOK ill so it's not urgent and to just see him again in January.
What should I do?
I have constant abdominal pain, have BM that go from 10 x plus a day to being so constipated I can't go at all for days, my menstrual cycle is messed up (it takes over 40 days to get it and lasts lightly for 2 days), am so exhausted and fatigued (go to work, get home and go to bed at 6pm), my libido is non-existent (i'm 21!!!), I get headaches, have lost 7kg since may for no reason, get joint pain, am really snappy now over insignificant things, loss of appetite and when I do eat, I end up in pain.
I understand I have it better than other people but is this really what everyday life for a Crohns patient looks like? I'm getting myself so upset over the fact that my life has basically been turned upside down.
Does anyone have any suggestions or something to even just make me smile - god knows we all probably need some of that..
Hoping you are all well.
I was placed on Budesonide for 3 months and also Azathioprine as a maintenance medication.
The problem is that I have had continued pain and everything that goes along with it. Ongoing inflammation was even recently shown on my MRE.
My specialist is encouraging me to stay on Azathioprine (despite me having side effects from it) and we have also been talking about surgery for the previous few months.
Today when I saw him again, he gave me a referral to a surgeon but said that I'm not dying and don't LOOK ill so it's not urgent and to just see him again in January.
What should I do?
I have constant abdominal pain, have BM that go from 10 x plus a day to being so constipated I can't go at all for days, my menstrual cycle is messed up (it takes over 40 days to get it and lasts lightly for 2 days), am so exhausted and fatigued (go to work, get home and go to bed at 6pm), my libido is non-existent (i'm 21!!!), I get headaches, have lost 7kg since may for no reason, get joint pain, am really snappy now over insignificant things, loss of appetite and when I do eat, I end up in pain.
I understand I have it better than other people but is this really what everyday life for a Crohns patient looks like? I'm getting myself so upset over the fact that my life has basically been turned upside down.
Does anyone have any suggestions or something to even just make me smile - god knows we all probably need some of that..
Hoping you are all well.