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I got fired

So, I got fired.

I don't know what to do. I contacted an attorney, he said I have a case. I have an appointment to meet with him on Monday.

I knew it was coming after last Friday's badgering so when my boss asked me to come into the conference room, I turned on my recorder. I have it all on tape.

In the meantime, I haven't won the lotto and have bills and bills up the wazoo. Anyone know a sympathetic millionaire will to spare a few k to help me out?

Eh. After going through all of this, I can only hope to be in the position one day to help someone out.
 
Last edited:
I'm not a millionaire but I am sorry :( why did you get fired? Will you be entitled to any benefits while you're out of work?
 

Trysha

Moderator
Staff member
Hi---
So sorry to hear you were fired and really hope you are successful with an appeal through the lawyer
Feel better soon
Hugs and best wishes
Trysha
 
I will receive unemployment, which is not enough to get by, but better than nothing.

Unfortunately, in addition to me being fired yesterday, my fiance found out his lung collapsed and they had to do surgery immediately. As long as everything went okay (we'll have a better idea when they do x-rays later today to see if things are up and running) he will only be in the hospital for 2-3 days.

I don't know what I am going to do about my appointment with the attorney on Monday. I mean his mom is around, but if it is his first day back home...I don't think I can just leave him.

2 spoonfuls of sugar to help the medicine go down, please.
 

Cross-stitch gal

Moderator
Staff member
Location
Vancouver,
Ouch:( Seems that when something happens everything else will come at once! Hope all goes well for you and life will return back to normal soon. :voodoo:Take care. :hug:
 
Sorry to hear that you were fired. I hope the attorney can help you out.

I had my lung collapse about 11 years ago, and spent 5 days in the hospital. If they do end up releasing your fiance on Monday, he should be ok for a few hours while you meet with the attorney. They will bandage up the incision where they put the chest tube, and he will be able to get around just fine. He shouldn't be in too much pain either. I actually drove myself home when I was released, and then went to my ex-girlfriend's house a little while later.

It can actually take a while for every bit of air that surrounded the lung tissue to be expelled. I wouldn't bet on him being released on Monday. If they see even the tiniest bit of air on the x-rays, they will keep him until it is gone.

Anyway, I hope your fiance has a speedy recovery, and you can get some help from the attorney. Take care!

Brian
 

360

Location
USA
I got fired today too. I have worked for the company for 8 years with an impeccable performance rating. I have missed quite a bit of work because of my Crohn's. Their FMLA insurance company denied me, denied my appeal, and now I have been fired for missing work. I have requested a reasonable accommodation and all they offered me was a position that would have been a 4 hour round-trip drive. It would have been worse that what I had. I am contacting an attorney tomorrow.
 

Cat-a-Tonic

Super Moderator
:( So sorry to hear this! How did the meeting with the attorney go?

I'm in a kinda similar situation but with my hubby - he got laid off from one of his jobs and demoted from his other job, so he's essentially not working. He applied for unemployment, and the employer that laid him off? They contested his unemployment! I didn't even know they could do that! They gave some BS excuse. So hubby appealed and won his appeal - but then somehow he messed up the paperwork and had to start all over again. And guess what, they contested it again, so we're waiting on another appeal and in the meantime are getting no money from unemployment. Grrr! Meanwhile I'm stressed and working to pay all our bills and my paycheck is not going to stretch quite far enough so now I've got to whip out the credit cards and tap into the savings account. So yeah, long story short, I feel you on financial stress and having piles of bills and insufficient funds/employment. It really sucks. I hope you can work something out with the lawyer or find a new (better) job soon. Hang in there, hun. Hopefully one of us will win the lottery soon so that we can all go live on that island...
 

360

Location
USA
I did not have the opportunity to call an attorney today. I will before the end of the week though. I will report back what I find out. I am filing for unemployment too.

I am going to go for broke.
 
These employers anger me. I to we fired In January but for legit performance issues that we blown out of proportion. None the less they got rid of me I found out because I was a risk with being out so often. I feel for ya, don't know if that recording is going to help in court as I do the same thing In interviews and any 1 on 1 meetings with boss's. Your lawyer will prolly tell you, or ask you if you had permission. I hope like hell I am wrong.
 

Lisa

Adminstrator
Staff member
Location
New York, USA
Scaryman - generally, if one person has knowledge of the recording being done there is no issue using it in court etc...it is when a 3rd party tapes a conversation that issues regarding warrants etc arise....

That stinks about being fired, please don't delay with the consult with an attorney....!
 
I was almost fired when I was denied long term disability but they held off once they saw I put in a law suit against the insurance company. Smart of them since I won the law suit!! The law suit took 2 years to settle but I won in the end! Settled out of court.

Just wanted to show there is a light at the end of the very long tunnel. Pls do follow thru with an attorney, maybe one that only gets paid if you win... then you know you have a case if they accept you! Good luck to all.
 
I think everyone has worked for a company like this before, my last company did exactly this and I ended up getting fired after they literally fabricated a whole bunch of lies against my job performance. I mean it was really bad what they were saying I neglected to do at my job while staring me in the face I couldn't believe it. So I got another job and it has been the best job I have ever had so if I wouldn't have gotten fired I never would have gotten this job. Here is an example of how great they are I just had resection surgery the 24th of July and I supervise people, so since its a smaller office of 40 people they flew someone in to do my job for 6 weeks, and the entire time nobody cared they just kept saying 'don't come back too soon' and 'your job will be here when you get back.' Just because of this I will be returning to work after 4 weeks mainly because I feel better but also because they have been so great with me. This is how a company should act with a person who is going through health issues. The reason I post this is because I want you to know it's possible to find a company like this they do still exist, keep your head up. Also Cat-a-Tonic I am sorry to hear about your husband I was unemployed for a year awhile back and it got really bad, make sure you start cutting everything you can like cable and cell phones it might be a long haul with this economy. Keep your head up!
 

Cat-a-Tonic

Super Moderator
Thermo, we haven't had cable in years, we watch free network TV and free hulu and we pay for the cheapest Netflix subscription so about $8 per month for that. We do have cell phones but they're basic, no texting or web or stuff like that. No landline phone either, just cells. I bought a bicycle in the spring to try to save some gas money and get fit by riding more. We rarely go out to eat, and if we have a date night we spend a whopping $8 to see the local live improv comedy show. I do much of my shopping at thrift stores and rummage sales. So yeah - we really don't have a lot of "extras" left to cut out of our budget! We do have a fair amount of debt (hubby's student loan from art school, medical bills of course, and some credit card debt) so that's what's been hurting us. The doctor bills never end! Even with insurance.
 
Thermo, we haven't had cable in years, we watch free network TV and free hulu and we pay for the cheapest Netflix subscription so about $8 per month for that. We do have cell phones but they're basic, no texting or web or stuff like that. No landline phone either, just cells. I bought a bicycle in the spring to try to save some gas money and get fit by riding more. We rarely go out to eat, and if we have a date night we spend a whopping $8 to see the local live improv comedy show. I do much of my shopping at thrift stores and rummage sales. So yeah - we really don't have a lot of "extras" left to cut out of our budget! We do have a fair amount of debt (hubby's student loan from art school, medical bills of course, and some credit card debt) so that's what's been hurting us. The doctor bills never end! Even with insurance.
Cat,

I know how it feels, the only thing lefyt to cut is electricity, and go with my generator, lol that's not going to happen. I do not have medical insurance. :(
 
Thermo, we haven't had cable in years, we watch free network TV and free hulu and we pay for the cheapest Netflix subscription so about $8 per month for that. We do have cell phones but they're basic, no texting or web or stuff like that. No landline phone either, just cells. I bought a bicycle in the spring to try to save some gas money and get fit by riding more. We rarely go out to eat, and if we have a date night we spend a whopping $8 to see the local live improv comedy show. I do much of my shopping at thrift stores and rummage sales. So yeah - we really don't have a lot of "extras" left to cut out of our budget! We do have a fair amount of debt (hubby's student loan from art school, medical bills of course, and some credit card debt) so that's what's been hurting us. The doctor bills never end! Even with insurance.
I often apologize to my wife for all of the medical bills as I know things would be so much easier without them. But then I laugh when we have to pay her student loans. Even with both of us working we still don't have cable or other luxuries several years since I was unemployed. Things are getting better now but right on schedule comes another several thousand dollar medical bill. Just enjoy each other and don't let money come between you, at the end of the day I tell my wife if it gets bad I will transfer everything to myself, divorce her and declare bankruptcy :rof:
 
Ha ha that's the attitude. I have not found a job yet, but I am not sure who you were directing that toward.

Money sucks. The financial strain of having health issues is a really frustrating one. I try not to let it get to me, but I think it plays a significant role in my anxiety. But you're right. The worst case scenario is bankruptcy. And in the big scheme of things, that is not so bad.
 
Ha ha that's the attitude. I have not found a job yet, but I am not sure who you were directing that toward.

Money sucks. The financial strain of having health issues is a really frustrating one. I try not to let it get to me, but I think it plays a significant role in my anxiety. But you're right. The worst case scenario is bankruptcy. And in the big scheme of things, that is not so bad.
Well I am coming up on $96k in medical debit alone, that doesnt include credit cards, or car note. I am slowly being pushed to the bankruptcy train. But I am holding off until last moment because i still have 3 strictures that wont get better. They had to use a pediatric scope with mild pressure to get passed one. So without medical insurance or a job I kind of need to hold off in case i need to kick the surgery bill in the bankruptcy as well. I hate like hell doing that but until the actually fix whats wrong (in my opinion, i wont get political here.) I have no choice :(:ymad::ymad::ymad:
 
Wow - I really feel for you all. I live in the UK and would like to share my (very different) experiences with you all in the hope that it may perhaps comfort to know that there are good employers in the world. Perhaps employment law is different in the US but here in the UK I think it is quite difficult for employers to sack (or fire) people because they have health issues...

I work for a small (about 350 staff)family-run retail company (i work in the Accounts Dept) and whilst I've been somewhat critical of the fact that they dont pay company sick pay -we only get Statutory Sick Pay which is about £90 per week I think- they have actually been very accomadating of my problems and done their best to make things easier for me; they have allowed me to shorten my working hours slightly to take into account that I can't always get into work at the normal time because mornings are my worst time, despite the fact that it does sometimes cause problems during busy seasons for the dept as a whole because im not there. It may not seem like much, but just knowing that I don't have to rush in the mornings really helps! They've done their best to be flexible as have I - on good days I make up for it when I can! And they do the same for other members of staff who have health issues too. I may (and often do!) complain about the way they do some things, but I can't fault them for this!

I wish everyone suffering financial hardship through no fault of your own the best of luck in finding justice. Britain may have it's faults but I will be forever thankful that we have the National Health Service, which means that whether you're employed or not, medical treatment is not dependant on whether or not you can afford to pay for it! We do have private health insurance schemes, but they usually just mean you get faster treatment. I know it can also be a 'post code lottery' with regards to which treatments are sometimes available but so far I cannot really fault the treatment I've had for my UC - even though I did appear to have 'fallen off the radar' with my local hospital and was'nt called for routine exams for several years when I ought to have been; I could have asked for a referral via my GP during that time had I been at all worried, however, and I know it would have been granted.

Good luck you guys.
 

360

Location
USA
Man EDZEL, granted you DO have something to fall back on, but it would suck to be at the mercy of your health care system. They are trying to push socialized medicine in the US. I have Crohns and just got fired, and would be a perfect candidate for that type of system, but I don't wish nationalized medicine on anyone, and I don't support it. And I also don't intend to start a political flame war either.

Sent from my Galaxy SIII
 
Man EDZEL, granted you DO have something to fall back on, but it would suck to be at the mercy of your health care system. They are trying to push socialized medicine in the US. I have Crohns and just got fired, and would be a perfect candidate for that type of system, but I don't wish nationalized medicine on anyone, and I don't support it. And I also don't intend to start a political flame war either.

Sent from my Galaxy SIII
Hi 360 :ysmile:

I'm not quite sure what you mean by a 'political flame war'...I certainly wouldn't want to get into an argument that 'mine's better than yours' or anything like that, since I don't really know enough about the US medical system to really judge, only know what I've read on here, which made me feel very grateful for our NHS, imperfect though it surely is! I'm quite intrigued to know why you don't support socialised medicine? I guess having grown up with the knowledge that if I'm ill I don't need to worry about not being able to pay for treatment makes me view any other health system with suspicion - the idea of having to even consider declaring oneself bankrupt due to huge medical bills fills me with absolute horror, I confess! But obviously such a system must have its good points too, right?

It's interesting though, that the British dental system seems to be moving away from being NHS funded - more and more dentists (orthodontists I think you call them?) are 'going private'. And we certainly seem to get better treatment from the private sector than those funded by the NHS (though it does seem to vary - my husband had a brilliant NHS dentist until we moved house, near where he worked). It's quite hard to find an NHS dentist now, though, so many have gone private: my family and I eventually signed up with a private practice rather than travel miles to the nearest NHS practice; and it is definitely a generally better service than most of the NHS ones we have visited in the past (if about a quarter again as expensive as NHS treatment). Unlike general NHS healthcare, here one must pay for NHS dental treatment (it's only 'free' to under-eighteens or pensioners), but it's cheaper because the costs are subsidised by the NHS, which of course means that the dentists tend to go for cheaper materials and so on (as it has seemed to me anyway). I was told by someone married to an NHS dentist that it was becoming harder and harder to make a living from purely NHS patients, and many of his colleagues had given up the struggle and gone private in order to earn a decent wage.

The only part of NHS healthcare that isn't totally 'free' is prescription medication (although even the word 'free' is a misnomer-if you work, you pay a National Insurance fee which is taken out of your wages by your employer and paid to the government, which covers any hospital treatment you may need. If you are unemployed or on disability benefit the government pays it for you...) If you're in hospital, whatever medication you are given there is not chargeable; otherwise there is a standard prescription charge (£7.40 at the present time) per item which if you need a lot of medication on a regular basis, can be costly! The fee may be more or less than the actual cost of the drug - a good pharmacist will tell you if you can get it cheaper off the shelf!) I have long felt that medication for conditions like UC should be free (they aren't, last I heard) - I think the criteria for this is that the condition has to be life-threatening. I'm not quite sure what my prognosis might be if I were to stop taking my medication but I'm pretty sure it wouldn't be too good...!!!

Sorry for the long rambly post - and just to be clear, I'm not trying to say that our system is better than yours (although going on what I know I prefer ours, just my opinion!) rather I'm sharing info because I'm curious to know how your system operates (admit that I may not fully understand it!) in comparison to ours - it's interesting to see the differences and what they mean for people in our situation! :ysmile:
 
Here is my thread about the beginning of the end.

http://www.crohnsforum.com/showthread.php?t=31778

Oh gosh, it really does sound as if you need to change your Doctor! And aren't the insurance companies heartless?! I feel for you.

Must confess to being horrified that you aren't allowed to use a client's restroom - to me, that seems like a flagrant violation of human rights!!! Is that a general policy in the US or just something your company chose to enforce? (and for what reason?) I wonder if that happens here in the UK too? (I'm desk-based, work in finance, so have never needed to find out).
Over the course of my time with UC I've had many occasions where I've had to pop into all kinds of establishments and ask to use the facilities - most are very amenable and I've not been refused often. I would find any kind of job where I'd need to be on the road for long periods very stressful and am grateful that I'm not in that line of work!

I found your remark that within 30 minutes of eating you need to 'go' very interesting - although mine isn't that fast, I have similar symptoms and can go up to 5 times after breakfast before I dare set out for work... and I have UC, not Chron's (or so I was diagnosed). Anxiety definitely does play a part for me, too - often I'll become anxious before a car journey (particularly if its likely to be a long one) and find I need to go before I set out. Walking can also 'set it off'. I also have periods of bloating and constipation, which I'm now thinking may be food-reactive... So now I'm wondering if it really is UC or have I been mis-diagnosed?? Just shows how little I really know about my condition... so glad I found this forum!

EDIT: apologies for the double post - I know some forums frown on them! I hadn't realised until I went back to read the post...
 

360

Location
USA
Hi 360 :ysmile:

I'm not quite sure what you mean by a 'political flame war'...I certainly wouldn't want to get into an argument that 'mine's better than yours' or anything like that, since I don't really know enough about the US medical system to really judge, only know what I've read on here, which made me feel very grateful for our NHS, imperfect though it surely is! I'm quite intrigued to know why you don't support socialised medicine? I guess having grown up with the knowledge that if I'm ill I don't need to worry about not being able to pay for treatment makes me view any other health system with suspicion - the idea of having to even consider declaring oneself bankrupt due to huge medical bills fills me with absolute horror, I confess! But obviously such a system must have its good points too, right?

It's interesting though, that the British dental system seems to be moving away from being NHS funded - more and more dentists (orthodontists I think you call them?) are 'going private'. And we certainly seem to get better treatment from the private sector than those funded by the NHS (though it does seem to vary - my husband had a brilliant NHS dentist until we moved house, near where he worked). It's quite hard to find an NHS dentist now, though, so many have gone private: my family and I eventually signed up with a private practice rather than travel miles to the nearest NHS practice; and it is definitely a generally better service than most of the NHS ones we have visited in the past (if about a quarter again as expensive as NHS treatment). Unlike general NHS healthcare, here one must pay for NHS dental treatment (it's only 'free' to under-eighteens or pensioners), but it's cheaper because the costs are subsidised by the NHS, which of course means that the dentists tend to go for cheaper materials and so on (as it has seemed to me anyway). I was told by someone married to an NHS dentist that it was becoming harder and harder to make a living from purely NHS patients, and many of his colleagues had given up the struggle and gone private in order to earn a decent wage.

The only part of NHS healthcare that isn't totally 'free' is prescription medication (although even the word 'free' is a misnomer-if you work, you pay a National Insurance fee which is taken out of your wages by your employer and paid to the government, which covers any hospital treatment you may need. If you are unemployed or on disability benefit the government pays it for you...) If you're in hospital, whatever medication you are given there is not chargeable; otherwise there is a standard prescription charge (£7.40 at the present time) per item which if you need a lot of medication on a regular basis, can be costly! The fee may be more or less than the actual cost of the drug - a good pharmacist will tell you if you can get it cheaper off the shelf!) I have long felt that medication for conditions like UC should be free (they aren't, last I heard) - I think the criteria for this is that the condition has to be life-threatening. I'm not quite sure what my prognosis might be if I were to stop taking my medication but I'm pretty sure it wouldn't be too good...!!!

Sorry for the long rambly post - and just to be clear, I'm not trying to say that our system is better than yours (although going on what I know I prefer ours, just my opinion!) rather I'm sharing info because I'm curious to know how your system operates (admit that I may not fully understand it!) in comparison to ours - it's interesting to see the differences and what they mean for people in our situation! :ysmile:
I meant no disrespect to you, mate. I added the "flame war" comment just to ward off any others who might get the idea to take my comment and run with it, thus derailing this thread.

I have friends and family in Germany, and they have a similar system as you. After seeing how the system works in the US, their admissions sound just like yours. While our privatized system has major faults (ie. high premiums, denial of services, high RX costs), in my opinion those things are worth it so that I may have the choice of which physician I want to see.

Often the longest we have to wait may be a few weeks to see a specialist. There is always the high-priced emergency room if needed. Family physicians are often not even needed in the loop when you have a chronic condition. It would be awful to have to drive many miles to see a specialist (although that can happen here too I guess) because there might not be one nearby.

I am fortunate to live in an area where there are world-renowned physicians, and I pretty much have the cream-of-the-crop to choose from. Being near a university that is highly regarded in the medical field (Indiana University) and Northwestern University 400 miles to the north, we have a plethora of doctors to choose from.

The main problem is the dressing that goes along with seeing private practice. So many physicians are so concerned about malpractice suits, and legal action, that many will not provide you the "help" you need to get around the insurance companies, who pretty much control the money part of it all. It's all a big racket. This is the part that needs repaired in the US. Social medicine will give you treatment, but it will likely be minimal, and you'll have to wait a LONG time to get that.

As I said earlier, I am one of the unfortunate to have a chronic disease. This means I will require treatment for the rest of my life. If I don't have insurance, it puts me in a quandary, much like some here have posted about. Nobody wants to go in the hole because of something they cannot help. However, we also have a whole other playing field in America.

It's called welfare and disability. And it's MUCH too easy for some people who don't REALLY need it, to get. And much too difficult for the ones who actually DO need it, to get.

The liberal portion of the USA (and likely others too) feels that it is the duty of everyone who actually works for a living to pay into a system to help the "less fortunate". I am the less fortunate. It is not my choice to not work. I physically cannot do some types of jobs. But I CAN do others, and it is my responsibility to try and carry my weight when possible. With the social system in place, it merely allows for people to become lazy and dependent on government assistance. Sure, I believe it's ok to help someone get back on their feet, but it should be temporary, and it should be to HELP them get back into the productive portion of the population. Not enable people to sit at home in subsidized housing, having a child every 12 months, tax breaks because of said children, and often drug abuse which often goes hand-in-hand with said scenario.

Our society has become a nation of "what can you do for me", instead of what can I do to help pull my weight. These people have figured out that it pays better to be on welfare than it does to actually spend 40 hours of their week at a job, EARNING their keep instead of just going to the mailbox on the 3rd of every month.

Socialized medicine will only be the icing on this cake I just baked for you.

I understand it can benefit people, including myself in a time of crisis, but it should NEVER be allowed to be used as a full-time option for lazy people.

The following videos are not an attempt to bash the Presidency, but to show the mentality of much of the uneducated population of the USA. This is what people expect from our government. This is what government medicine, welfare, and all other social programs have caused.

http://www.youtube.com/watch?v=P36x8rTb3jI

http://www.youtube.com/watch?v=fOZ-Etb0k0Q
 

360

Location
USA
Oh gosh, it really does sound as if you need to change your Doctor! And aren't the insurance companies heartless?! I feel for you.

Must confess to being horrified that you aren't allowed to use a client's restroom - to me, that seems like a flagrant violation of human rights!!! Is that a general policy in the US or just something your company chose to enforce? (and for what reason?) I wonder if that happens here in the UK too? (I'm desk-based, work in finance, so have never needed to find out).
Over the course of my time with UC I've had many occasions where I've had to pop into all kinds of establishments and ask to use the facilities - most are very amenable and I've not been refused often. I would find any kind of job where I'd need to be on the road for long periods very stressful and am grateful that I'm not in that line of work!

I found your remark that within 30 minutes of eating you need to 'go' very interesting - although mine isn't that fast, I have similar symptoms and can go up to 5 times after breakfast before I dare set out for work... and I have UC, not Chron's (or so I was diagnosed). Anxiety definitely does play a part for me, too - often I'll become anxious before a car journey (particularly if its likely to be a long one) and find I need to go before I set out. Walking can also 'set it off'. I also have periods of bloating and constipation, which I'm now thinking may be food-reactive... So now I'm wondering if it really is UC or have I been mis-diagnosed?? Just shows how little I really know about my condition... so glad I found this forum!

EDIT: apologies for the double post - I know some forums frown on them! I hadn't realised until I went back to read the post...
Yeah, sorry about the double-posts...but these were WAY too long to multi-quote.

To answer your question, yes it was the companies policy to not allow us to use a clients facility (although I had to on a few occasions, and the people were very understanding). Had the company found out, I would have been fired on the spot.

I eat Immodium AD like it's candy. It's the only way I can buy time to do the things I am required to do during the day. I have to stop taking them for a few days at a time to let my body sort itself out. Those days are usually spent a prisoner in my own home. Often when I am out and about, walking, standing for a long period of time, and even driving (because it shakes my guts) are usually cause for emergency stops. If I sit, or lay down, I can go hours without running to the bathroom. It seems gravity is as big a enemy as food. The downside to this is I have packed on nearly 100 extra pounds because I have become lethargic. I am in the process of trying to shed those extra pounds now.

Crohn's is vicious. I know it also affects everyone differently, but with the same general misery. I wouldn't wish it upon my worse enemy.
 
I am sorry to read about people losing their jobs and the huge medical bills. The way things are going in the UK it will not be long before the Government put the sick and disabled in work camps. I actually left my job due to the fact I was having a lot of time off. I was advised by my consultants my job was triggering my illness as it was extremely stressful, So left through medical advise.


EDZEL Prescriptions are only free if you receive income based benefits or child tax credit.Contribution based claimants don't get free prescriptions,glasses eye tests or dentists.In fact on contribution based benefits you get no help at all.
 
Hi 360

Please don't worry, I didn't feel that you were disrespecting me at all! :ysmile: And thanks for both of your very detailed replies - it's great to hear about other people's experiences; kind of gives some perspective on my own!

I took Immodium with me on holiday this year (first time ever!) but never used it - I've heard that long term usage can result in the need for increased dosages as the body becomes accustomed to it - but I totally get that for some folk it may be the only way to lead any kind of 'normal' (doing things non-sufferers take for granted!) life so I'm not being at all judgemental when I say that... we do what works for us as individuals and in the past I've used a Kaolin and Morphine solution (which I believe is now banned from sale in the UK - certainly not seen it on sale for a long, long time) to get me through the odd bad patch! What seems to work for me at the moment is increasing my dosage of sulphasalzine from 3 to 4 after each meal and not eating between meals... however I try not to do that too often because then my gut seems to slow right down and I get bloated... My GP and the consultant both said that this was at the upper limit of what I should be using as a maintenance dose though, so if that ever stopped doing the trick I suspect they might want to put me on steroids... which I am not keen on for all kinds of reasons...

Interesting that the movement of car journeys affect you too - I had wondered if it was all in my mind but its an undeniable fact that I can use the restroom at home any number of times before leaving on a trip only to find that an hour down the road I'm telling my husband, 'we need to make a stop and soon!' so it seems I am not alone in this, which is comforting!

I have co-dydromol on prescription for intermittent back pain (trapped nerve) which (touch wood) I don't seem to need to use very often for that at the moment but which I have noticed does seem to 'slow things up' in the gut department; so I have occasionally resorted to that if I know I'm going on a long trip! Not ideal though, because then I get 'bunged up' and there is also the risk of addiction, so I only use it sparingly for that reason and I'm sure my GP would be horrified and probably refuse to give it to me any more were I to tell her (so I don't)!!!

I must say that being able to choose which physician you see as you can in the US does sound like a great way forward - here in the UK, as you've said, we are pretty much limited in our choice of GP (General Practitioner or what I think you call a family physician who deals with the day to day stuff) by where we live! When we lived in Farnborough we had a great GP (who was actually based in Aldershot but our postal address in Farnborough was just within their border so I could stay on her books, and my husband (who comes from Camberley where we now live) moved to the same practice. We were very sad to have to leave the practice when we moved to Camberley (something we had little choice about at the time for various reasons). We had a pretty good GP for many years (although he wasn't very on the ball when it came to ensuring I got my periodic check ups, so maybe not so good in hindsight) but when he retired we were put on the books of a female GP who my husband doesn't like at all. However she has been very insistent about my check ups and I like her for that!

I agree with you totally about the welfare and disability system (in both our countries) - with ours, it infuriates me that when the government makes changes to try and deal with the malingerers, it often ends up impacting on the very people who DO need it - so unfair! I'm not on any kind of welfare or disability benefit myself, for which I am very thankful, as I am able to work. Although I do feel that I should not have to pay for my UC related medication because without it, I would surely be unable to work after a while and would probably be an even bigger drain on NHS resources than the cost of my medicines would be - anyone who works pays into the NHS as I said and it angers me that I have paid into it all my life and still have to shell out for essential medicines whilst (as you observe) some people get benefits when clearly they shouldn't be getting them because they could work but choose not to... the government is always trying to crack down on what we call 'benefit cheats' but it's difficult when the benefit is often more than the minimum wage; and some people who would like to work find that after paying travel costs, childcare costs and so forth, that they are actually better off financially staying on benefit than if they were to go to work - so they don't - which isn't exactly laziness or an inability to work but more a desire not to have to feed their kids crap because work doesn't pay enough, and I do sympathise with that I guess. I've no objection to paying into a system which helps the less fortunate when they need it as well as myself, but yes, I do resent paying for people who could work but prefer not to because they are idle, and there is a big difference between them and the people who'd like to work but find it economically un viable. My OH has never claimed benefit of any kind (one week between leaving school and getting his first -and only!- job, I think) and I have only been on Unemployment Benefit a few times in my whole working life, for very short periods, so I support the need to fine tune the system to exclude the real cheats, but dislike the scatter-gun approach... Back to medication costs, we do have a 'pre-payment' card system (i use it) which you pay for up front once a year at a fixed fee and that will cover the cost of whatever medication you might need during the course of that year, but it is only worth it if you need a lot of medication, otherwise you'd be paying over the odds for it...

It's hard to know what the ideal solution/system would actually be, isn't it - if everyone was honest and hard working it'd all be fine... :ybiggrin:

BTW I hope we haven't gone 'off topic' here 'cause this is really interesting! I see there's an option to 'friend' people on the forum - would you mind if I were to 'friend' you? :ysmile:
 
I am sorry to read about people losing their jobs and the huge medical bills. The way things are going in the UK it will not be long before the Government put the sick and disabled in work camps. I actually left my job due to the fact I was having a lot of time off. I was advised by my consultants my job was triggering my illness as it was extremely stressful, So left through medical advise.


EDZEL Prescriptions are only free if you receive income based benefits or child tax credit.Contribution based claimants don't get free prescriptions,glasses eye tests or dentists.In fact on contribution based benefits you get no help at all.
Hi Gus - but isn't it a fact that some prescriptions in the UK are 'free' if the condition is life-threatening? Heart problems or diabetes and so on? Or am I misinformed? Although if one lives in Scotland, aren't ALL prescriptions free?!? (bit of a sore point with some, to be sure)
 
Hi Gus - but isn't it a fact that some prescriptions in the UK are 'free' if the condition is life-threatening? Heart problems or diabetes and so on? Or am I misinformed? Although if one lives in Scotland, aren't ALL prescriptions free?!? (bit of a sore point with some, to be sure)

Yes prescriptions are free if you receive income based benefits which are means tested. I only get free prescriptions because I get child tax credit for my daughter. Only these conditions get free prescriptions. Other life threatening conditions do not. There was a petition for free prescriptions to people with long term conditions,not sure how successful it was..

A permanent fistula requiring dressing.
Forms of hypoadrenalism such as Addison's Disease.
Diabetes insipidus and other forms of hypopituitarism.
Diabetes mellitus except where treatment is by diet alone.
Hypoparathyroidism.
Myasthenia gravis.
Myxoedema (underactive thyroid) or other conditions where supplemental thyroid hormone is necessary.Epilepsy requiring regular anti-epilepsy medication.
If, because of a permanent disability, you cannot leave your home without help.
 
Yes prescriptions are free if you receive income based benefits which are means tested. I only get free prescriptions because I get child tax credit for my daughter. Only these conditions get free prescriptions. Other life threatening conditions do not. There was a petition for free prescriptions to people with long term conditions,not sure how successful it was..

A permanent fistula requiring dressing.
Forms of hypoadrenalism such as Addison's Disease.
Diabetes insipidus and other forms of hypopituitarism.
Diabetes mellitus except where treatment is by diet alone.
Hypoparathyroidism.
Myasthenia gravis.
Myxoedema (underactive thyroid) or other conditions where supplemental thyroid hormone is necessary.Epilepsy requiring regular anti-epilepsy medication.
If, because of a permanent disability, you cannot leave your home without help.
Thanks for putting me straight, Gus! I guess I must have picked up on talk about this back in 2008. In fact there is an article in today's online Guardian which updates this: http://www.guardian.co.uk/politics/2010/may/27/free-prescriptions-plan-delayed-coalition - what a co-incidence that this should appear just as we are discussing it! (As the late Douglas Adams' Dirk Gently would have it, "Its all part of the interconnectedness of all things" - makes you wonder...) I shudder to think of the thousands of pounds I have spent since 1984 on medication, and still suffered (though not nearly as badly as some, I've come to realise since joining this forum). As always, it comes down to money... which does indeed seem to make the world go round!
 

360

Location
USA
Maybe getting fired was a good thing. I just got a job interview today somewhere better!
Wish me luck!
 
EDZEL and gus, in the UK there are lots of options to make multiple prescriptions affordable. You certainly don't have to pay £8 odd each time.

You can fill in an HC1 form to apply for help with health costs under the Low Income Scheme. Contribution based benefits are acceptable as income. Even if you are working you can apply. This has two outcomes. HC2 certificate which is full help with NHS costs inclusing free prescriptions. HC3 certificate which is partial help without free prescriptions. I only get partial help, but having to spend £48 on travel to London for a Hospital appointment, I can get alot of it back since I only have to pay £11.70 per week for travel.

If you can't get them free then get a pre-payment card. They last for 3 months or for a year. The yearly one can be paid for by direct debit over 10 months. These are handy if you need multiple items. Once you have a card you can have unlimited items until it expires. I get a yearly one even though I am not always sure it will "pay for itself" because you never know when you might need anti-biotics, ear drops etc. Every year i've had it i've been prescribed extra stuff, this year it was one lot of Pred and 2 supplements so would have been 3 charges. On top or around 10 items I get on repeat per year.

Google any of these and it will send you in the right direction.

I agree, the list of medical conditions giving you exemption is horribly out of date and needs changing.
 
Hi Starrgirrrl (great name - just hope I got the number of 'r's right!!)

I'm aware of the pre-payment card and do have one in fact - but I wasn't aware of the HC1, 2 or 3 schemes - although I am not sure I would be eligible because I am able to work full time (thankfully) and because I live only a few miles from where I work where my GP and consultant are based, so my illness related travel costs are minimal. I will certainly look into it though; you never know!

Edit: I checked out the HC schemes and I'm not eligible - it seems I (a) earn too much and (b) am not classed as disabled - which at the moment I feel is probably right since I can work and go out and about independently, whereas others cannot. The pre-payment certificate is my best option at present it seems.

Thanks for your input though - hopefully it will help someone who can claim!
 
Thanks StarGirrrrl I was aware of those options. I just think it's very unfair that people on income based benefits get help automatically, but on contribution based we have to fight for any little help that's available.
Yes the list is very outdated.
 
360, congrats on your interview. I hope it goes well. I have been at the hospital since last Friday, so a solid week, because my fiance's lung collapsed and he had to have surgery. Just brought him home today. I am looking forward to being able to more intensively search for a good job. I did some looking and applying over the last week, but was unable to dedicate my full attention to the search what with having him in hospital.

I do believe there is better out there for me. I am sure the same is true for you. So now we just have to find it...
 
I appreciate your words of encouragement. However, not to be a negative Nancy, but I have a tumor that I forgot about. They found it in 2005, and the Rheumy I saw wanted to look into it further as apparently that is where most of what I call 'crohns pain' is coming from. I told her about the MRI I had at Mayo the first of August and she put off her MRI to see the results of the first one so as not to do any redundant testing.

The note on the MRI is: 3.1 x 2.3 cm lesion projected off of the posterior right iliac bone into the gluteal musculature demonstrates some enhancement, and appears to have cortical and medullary continuity with the underlying bone consistent with an osteochondroma. No appreciable thick cartilage cap. Unless there are referable clinical symptoms, this does not require further evaluation.

Of course, in the Mayo doc's letter to me, he indicates that the patient was not complaining of symptoms prior to the visit. I called his office furious because I told him while there that is where I get most of my pain. It also goes into my butt cheek which is why (somewhere else on the forum) I questioned about abscesses going into butt cheeks thinking perhaps that is what I had going on.

When I read the report, I almost threw up because I felt so certain that it is a chondrosarcoma. I know I am always a million steps further ahead than I need to be...
 

360

Location
USA
You have to really be careful what you say to the doctors. You want to complain as much as possible and don't tell them about ANY good days. That came back to bite me in the ass.

Sent from my Galaxy SIII
 
What happened to you?

The attorney I consulted with is considering taking me on contingency only. He wants to look at my personnel file first before he makes a decision.
 

360

Location
USA
I talked to my physician like he was my best friend. So much for confidentiality. He noted EVERY thing I have ever told him. Once the insurance company requested my records, they made up their own thesis about what was wrong with me based on what he put in his notes. I would tell him about having good days and bad days. I would tell him about being anxious when I was in public about not knowing when or where I might find a facility in case of emergency. I asked about medical marijuana. Basically, I bared my soul to him. And it cost me big time. FMLA denied my claim because of it.
 
I have been working at my job for almost three months and have already gotten two warnings (one verbal and one written) and been threatened with suspension and even termination due to my missing work. Last time I was written up was two weeks ago when I had to call in the day after leaving early from work when a severe flare up occurred shortly before I had to be at work. I went in any ways because I knew I was on shaky ground from the verbal warning and the pain was so bad I had to leave. The next morning was not any better, so I called in instead of going in and looking like a wuss to everyone at work who has no idea what I am going thru and having to get sent home again. That decision garnered me the written warning. The managers understand, sympathize and are concerned, but because I work for a big company, they have to go by the attendance policy to the "T" and I will most likely lose my job soon. I am going to do my best to keep it from happening, but the rub is that you never know when a flare up is going to happen, how bad it will be and for how long. At least the diarrhea is consistent in being non-stop everyday, but flare ups, not so consistent. I think the longest I have gone without a flare up is like five or six days. Dealing with one now that started after I got home from work last night. It is mild and I will be able to work tomorrow (had today off), but being mild is the exception, not the rule.
 
Movienut, if you work for a big company, you should be covered by FMLA. I think 50 employees or more and you have to be covered. Ask your work for FMLA paperwork and get it to your doctors.

The Tuesday before I got fired was my first appointment with the Rheumy. I told her I was sure they were going to fired me after the battering I took the Friday before and she offered to fill out FMLA paperwork for me basically letting my employer know that every month there would be bad days and they were doctor approved. I told her I figured it was too late, plus I didn't think my employer was large enough to have to adhere to FMLA. Turns out I was right on both counts, unfortunately. But for you, I think you can protect your job yet. But I would get moving on it before it is too late.
 
Movienut, I think for FMLA you have to be employed with that employer for 12 months in order to apply for FMLA leave but I could have it wrong.
 
@clash and @thatswhatshesaid, I have been there for almost 90 days, that milestone is coming next week. I doubt I have FMLA yet, but I will find out for sure. I know when I worked at Disney World, FMLA was available almost immediately, but the Disney had/has awesome benefits.....who I work for now, none at all. I won't mention who I work for by name but they are a large non-profit retail company who take care of the mentally challenged and other people who need help getting job training and work. They are a great company who gives back, but they are still a company who hires no one full time except the managers so they do no have to offer benefits. The store where I work at has about 30 employees, has sales over 1.5 mil a year and yet not one single employee is full time except the four managers. I will check to see what is available, but I am not going to hold my hopes up.
 
Edzel

This may sound weird when I tell you I'm on a lifetime award of DLA (I have Asperger's with severe interpersonal and social problems - so imagine what FUN all this is for me!). I'm SUPPOSED to be on lifetime income support too, but they keep stopping it arbitrarily - and for completely spurious and fabricated reasons (if they do give a reason; this last time it was because, apparently, I'd moved and not told them! Erm, no, I'm still at the same address I have been for the last 30 years!).

Anyway, I DO have a problem with them chasing the 'cheats' - and I'll tell you for why: - the bunch of w***ers running this country into the ground are FAR too fond of protecting their friends in mega business. No, I'm NOT condoning someone being arrested for defrauding the DWP of £20,000, or whatever the amount might be, but that's penny jar stuff when you consider that the likes of Vodafone, Virgin, Google, Pfizer, GlaxoSmithKline, Barclay's and Philip Green (CEO of the Arcadia group which owns stores such as Topshop, Boots and BHS) are evading taxes of around £30bn each - and counting! Last summer, Scameron and Sam were Phil's guests at his mansion in Antigua - so, if he's forced to cough up the lolly, they won't get another jolly...

You have to remember that this country's being run BY multimillionaires FOR multibillionaires - DO NOT believe any of this "we're all in it together" crap!

Before my health deteriorated to the point it has, I was a very active political campaigner; I belong to so many lobbying groups: - Occupy, UKUncut, 38Degrees, Socialists for A Republic, DPAC (Disabled People Against Cuts) - you name it, I've joined it. What the ConDems are doing to this country makes me sick - literally! Private Eye printed a strip where they morphed Scameron into Maggie - didn't take many frames! Our kids are growing up in Thatcherite Britain - just like I did. I remember the poll tax riots, the miners and steelworkers strikes, the numerous strikes by British Rail staff only too well, Dave is simply continuing where Maggie left off.

I love my country, which is why I'm frustrated I can't be active anymore (or at least for now). The next demo I'm going to miss is the one to coincide with the start of the Paralympics run conjointly by UKUncut and DPAC; no it's not against the Paralympics, we're using them to highlight the sadistic and cynical way this government is treating disabled people by outsourcing benefit testing to ATOS (Arseholes Terminating Our Security as I've dubbed them). They have people running scared; only yesterday I read the story, on the DPAC website, I think, of a woman with MS (which, obviously, is a condition which is only going to deteriorate) having to sell everything she owned just to survive because she was told she was 'fit for work' (and placed in the 'working group' for ESA. She has appealed 6 times and lost every time! She's wheelchair-bound, has very little flexibility in her hands, and is on oxygen much of the time - what work could she POSSIBLY be fit for...?! Aside from the CD, I've no physical disability, but I'm unemployable due to the problems my Asperger's causes me. I want to fight for people like that lady, for myself and for the millions of other disabled folk being forced out of their homes, or who can't leave their homes because their council care is being cut or, in many cases, removed completely! Scameron, Clegg, IDS (I've always thought his initials sounded like some kind of GI disorder...) Osborne et al sit in their ivory towers, entertaining their billionaire mates whilst the nation suffers. Never mind 1984, this is Animal Farm!

Okay, I'll shut up now, I don't want to start a political debate, either - I just wish my bowels were as strong as my opinions!

Peace,

Sarah xxx
 
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