I'm going to tell you a bit about myself.
30 yrs old. Dx with IBS 10 yrs ago. Ignored all bowel symptoms and chalked them up to being IBS. Then December 2010 - pain (like 8 to 10), cramping, and basically filling up the toilet with soft stool and little bit blood (sorry if TMI). Got into doc at end of January 2011, got a referral to a GI and then the testing began.
- April - colonoscopy - inflammation in terminal ileum, bx showed granuloma (crohn's or acute infection)
- May 2011 - GI says "most likely" CD let's either start you on meds or try a VCE. So I take the VCE, worried that I may have CD elsewhere because of IBS dx 10 yrs ago.
- June 2011 - ER visit for 10/10 abd pain. Felt like an obstruction with crampy pain, nausea, vomitting but apparently I was constipated?? (needed morphine for pain and got muscle relaxants)
- July 2011 - VCE - unremarkable. Mild inflammation in TI.
- August 2011 - bloodwork "normal"
- Waiting for appointment....
- October 2011 - Appt with doc. Unsure what to do and thinks that maybe it's not CD because I am having lots of bloating, constipation (but with soft stool never hard just doesn't want to come out and when it decides to go - it blows out - sorry again TMI). I suggest SBFT. He thought I already had one as he was looking at my results from 2002 (IBS dx)
- November 2011 - had SBFT - hate barium!! Can still feel it in my abd. Called my doctor's office today to see if they got results and if I could go in for an appt. They have the results but he hasn't dictated on it yet (more testing vs appt). I ask the receptionist the results and she says that it is abnormal. Some areas are "too fast" and some are "too slow" then she states there is a lot of medical jargon she doesn't understand. I ask if it mentions possible CD but it is not on there. She states that doesn't mean it's not that.
So I am now waiting to either get in to see him or go for more tests. Since May I have lost 25 lbs and I also get joint pain that comes up when I am feelin the worse.
So that's my story. Have any of you had a SBFT (small bowel follow through or barium meal) that indicated you had motility issues and you were dx with CD? It's not like I want CD but I accepted it when he said it in May and then for him to change his mind is hard.
THanks!!! :rosette2:
30 yrs old. Dx with IBS 10 yrs ago. Ignored all bowel symptoms and chalked them up to being IBS. Then December 2010 - pain (like 8 to 10), cramping, and basically filling up the toilet with soft stool and little bit blood (sorry if TMI). Got into doc at end of January 2011, got a referral to a GI and then the testing began.
- April - colonoscopy - inflammation in terminal ileum, bx showed granuloma (crohn's or acute infection)
- May 2011 - GI says "most likely" CD let's either start you on meds or try a VCE. So I take the VCE, worried that I may have CD elsewhere because of IBS dx 10 yrs ago.
- June 2011 - ER visit for 10/10 abd pain. Felt like an obstruction with crampy pain, nausea, vomitting but apparently I was constipated?? (needed morphine for pain and got muscle relaxants)
- July 2011 - VCE - unremarkable. Mild inflammation in TI.
- August 2011 - bloodwork "normal"
- Waiting for appointment....
- October 2011 - Appt with doc. Unsure what to do and thinks that maybe it's not CD because I am having lots of bloating, constipation (but with soft stool never hard just doesn't want to come out and when it decides to go - it blows out - sorry again TMI). I suggest SBFT. He thought I already had one as he was looking at my results from 2002 (IBS dx)
- November 2011 - had SBFT - hate barium!! Can still feel it in my abd. Called my doctor's office today to see if they got results and if I could go in for an appt. They have the results but he hasn't dictated on it yet (more testing vs appt). I ask the receptionist the results and she says that it is abnormal. Some areas are "too fast" and some are "too slow" then she states there is a lot of medical jargon she doesn't understand. I ask if it mentions possible CD but it is not on there. She states that doesn't mean it's not that.
So I am now waiting to either get in to see him or go for more tests. Since May I have lost 25 lbs and I also get joint pain that comes up when I am feelin the worse.
So that's my story. Have any of you had a SBFT (small bowel follow through or barium meal) that indicated you had motility issues and you were dx with CD? It's not like I want CD but I accepted it when he said it in May and then for him to change his mind is hard.
THanks!!! :rosette2: