So .. Blue Cross denied Pill Cam #5 ... I'm not really surprised. My GI is working with Given Imaging to see if they will donate one to me but she's not hopeful.
So I emailed her and laid out my situation which is thus:
I am on unemployment and I'm already on my "extension" which runs out in approx 3 months, this is how I pay for my Cobra insurance from my former employer. It costs 500.00 a month. When unemployment runs out, I have no way to pay for insurance. My parents have the facilities to do so but I don't feel it's their responsibility to do it and I'm not going to ask them to.
Beyond that, if I am able to fund my insurance, it runs out effective 2/2010 and given how long this has gone on with various doctors doing tests and re-tests and trying medications and such ... who knows if they'll have a firm hard diagnosis by next february. I am applying for jobs but the market is not very good here right now and if you add on the fact that I'm still NOT healthy .. well it's not a pretty picture.
So I asked my doc if she'd refer me to a Hematologist since she mentioned that might be worth doing since my blood work indicates a possible bone marrow/immune deficiency ... she declined wanting to get this capsule study done first .... hoping I guess that maybe they'll see something ... that they didn't see in #4 but they did in #3 ... and treat it as Crohns despite the accumulating evidence that it might not be or might be but other issues along with it (the IgG deficiency I had to ASK THEM to test for ) being one of them.
I am by no means any worse off then anyone else here. There are plenty of you that I read your stories and my heart just breaks for you. In my selfish mind though, I feel I deserve at least a solid someone will stick behind it diagnosis and treatment plan. I feel though that at this point, I'm going to have to collapse and be near death for anyone in the medical community to take me seriously and I hate to admit this but I've broken down in tears twice in the past 3 weeks, I _never_ cry, it's just not something I do but damnit if this isn't finally wearing me down to the point of emotional breakdown.
Thanks for listening (reading actually to be accurate heh)
So I emailed her and laid out my situation which is thus:
I am on unemployment and I'm already on my "extension" which runs out in approx 3 months, this is how I pay for my Cobra insurance from my former employer. It costs 500.00 a month. When unemployment runs out, I have no way to pay for insurance. My parents have the facilities to do so but I don't feel it's their responsibility to do it and I'm not going to ask them to.
Beyond that, if I am able to fund my insurance, it runs out effective 2/2010 and given how long this has gone on with various doctors doing tests and re-tests and trying medications and such ... who knows if they'll have a firm hard diagnosis by next february. I am applying for jobs but the market is not very good here right now and if you add on the fact that I'm still NOT healthy .. well it's not a pretty picture.
So I asked my doc if she'd refer me to a Hematologist since she mentioned that might be worth doing since my blood work indicates a possible bone marrow/immune deficiency ... she declined wanting to get this capsule study done first .... hoping I guess that maybe they'll see something ... that they didn't see in #4 but they did in #3 ... and treat it as Crohns despite the accumulating evidence that it might not be or might be but other issues along with it (the IgG deficiency I had to ASK THEM to test for ) being one of them.
I am by no means any worse off then anyone else here. There are plenty of you that I read your stories and my heart just breaks for you. In my selfish mind though, I feel I deserve at least a solid someone will stick behind it diagnosis and treatment plan. I feel though that at this point, I'm going to have to collapse and be near death for anyone in the medical community to take me seriously and I hate to admit this but I've broken down in tears twice in the past 3 weeks, I _never_ cry, it's just not something I do but damnit if this isn't finally wearing me down to the point of emotional breakdown.
Thanks for listening (reading actually to be accurate heh)