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I went to the doctors today.

tlc-x

Undiagnosed Teenager
Location
England
Saw Dr Hadley today. Usual kind of appointment, she reminds me that i'm ill...

I've been thinking though, i've been seeing the doctor for 4 years and every appointment they just say it's IBS and then that's it... it's taken 4 years to be put on the Amitrip and have an MRI for this. I've given up caring what illness I have, I just want it to stop. In 10 years from now, I could be diagnosed with crohns or still get told it's just IBS. Who knows. I just want the pain to stop.

I just want them to stop reminding me that i'm ill and then not do anything about it. Atleast 2012, they've given me an MRI scan and put me on medications that seem to be helping, but I can't be on them long term.

My doctor said that other than give me Amitriptyline, they can't do anything else for me except for counselling. My counsellor has said because it's not my mental health, there isn't anything they can do for me.

I'm still waiting for June to come along to see my specialist and also seeing Doctor Snook in a few months at some point as well. If you've read any other posts, you'll know how much I want to see Snook as he deals with the rest of my family who have Crohns.

Not much else to say really. We're making progress but soooo slowly but this could have been done years ago. I honestly do not know what i've done for four years other than sleep and lay on the sofa.

As for my irregular periods, i've stopped taking Microgynam (might have spelt that wrong) pill and told the doctor I would like something else to regulate my periods and stop how heavy they get. She's just given me some tablet I was on last year that didn't help. But it's better than nothing I suppose. But she thinks I want to be on the pill for contraception (i'm not sexually active), she doesn't believe me that my periods are heavy and painful. I don't think I need to go into how heavy and painful they were :lol:

I'm still really poorly at the moment mainly at night, but the Amitrip should start helping more over the next few days.

I was just wondering though, should I just accept that I might actually have IBS or do I keep fighting? What if I do just have IBS? How do I know? I've read all of these charts IBS vs IBD and i'm in the middle. I don't know whether to give up fighting or not. How do I know when to keep fighting?

They told me four years ago that I have IBS but yet we're still fighting them to just help me and the pain. So I don't know what to do.

Just to note, for the past four years, i've just suffered and it's getting worse - how ill I am now, I wasn't this bad 4 years ago, but still poorly enough to miss school and just sleep on the sofa.

Hmmm.. that's all for now. I hope everyone is having a good tummy day. :thumright:
 
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Astra

Moderator
Hopefully the Amitriptyline will help.
If you do have IBS, which is a functional disorder, meaning there's a problem with the function of a part of the digestive tract; then that's why no abnormality will show up with scans or MRIs: cos it's all structurely normal.
I know you've exhausted everything, read everything about IBS, but................
What if it IS IBS? It's a very painful condition, and it does exist, and it's treatable.
Give these a ring, get some advice.

The IBS Network
Tel: 0872 300 4537
Web: www.theibsnetwork.org
Offers advice, information and support for people with IBS.

:hang:
 
I was just wondering though, should I just accept that I might actually have IBS or do I keep fighting? What if I do just have IBS? How do I know? I've read all of these charts IBS vs IBD and i'm in the middle. I don't know whether to give up fighting or not. How do I know when to keep fighting?


I think your doing a good job of being persistent, because you dont want to spend the rest of your life sleeping on the sofa.. but i dont see a big different between being diagnosed with ibd or ibs, they'll try the same basket of medications for either.

Amitrip is a good idea cause it may settle the nerves in your gut. and you said it was working a bit. i think it might take up to 8 months for it to fully have effect.



I just want them to stop reminding me that i'm ill and then not do anything about it.
LOL dont threat about them saying that. they say that to everyone.




Hmmm.. that's all for now. I hope everyone is having a good tummy day.
sweet :)
 
Keep fighting because 4 years no improve with treatment and diet, then obvious something else wrong. Also has not you mental health any good because soon or later people will think at cuckoo only word that I think of. Trust me here.
 
@Dr who.. they don't give same meds for IBD and IBS :-(

@Tasha.. get better quick chook.. and I hope you get some answers.. I'm going through the same thing and once they have made that IBS diagnosis they often won't even consider other things.
 

Catherine

Moderator
I have dx of ibs from 20 years ago. I believe I only have ibs but I am having a few tests,to rule out something more serious. My daughter has crohns. Sarah was also dx with ibs first. We went on the Fodmap diet, on this diet my tummy got so much better and I found milk gives me heartburn. But sarah got so much worse and was dx with crohn in jan.
 
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