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I have had IBS for over 40 yrs and never thought or heard of IBD until March 2021 when I started this journey. My first office followup is tomorrow with the GI. After initial testing he thought my symptoms were more caused by my IBS and not IBD. He prescribed Budesonide for 2 months,I only had to take 16 out of 30 pills. I will find out what is ahead for me and my question to the community is ,are there others who initially were Dx with IBS who subsequently developed IBD and now are dealing with both?


Well-known member
Plenty. Sometimes IBD is misdiagnosed as IBS and sometimes you simply have both but IBS doesn't turn into IBD.

Good luck with your appointment. I hope they can give you good definitive answers and a plan forward.


Staff member
Hello and welcome to the forum

Unfortunately it is fairly common for people with IBD to either be undiagnosed or have an incorrect diagnosis for a long time, personally it took nearly five years for me to get a diagnosis.

Just a question, when you say you only had to take 16 out of 30 pills, do you mean you felt better after the 16 and stopped? or you felt better but carried on or didn't feel better at all? I only ask because its super important to complete courses of steroids, and they really shouldn't be stopped suddenly unless there is a very specific reason like a severe allergic reaction.

There definitely are people dealing with both IBS and IBD as well, my nurse says its actually more common than people realise, it can make it difficult when trying to distinguish what symptoms are IBD vs IBS, but it is possible to manage both conditions.