Hi all - I need some advice on an ileostomy.
Quick history:
2009 I had a resection which split leading to peritonitis and an emergency ileostomy. I then developed 2 fistulas.
2010 - stoma reversed and fistulas removed. Became anaemic and then got a capsule camera stuck between 2 strictures.
2012- November went for resection - 2 days later it split, peritonitis, emergency ileostomy, icu.
Feb 2013 - stoma reversal due to massive output - 2 days later join split and emergency op to create a fistula with the idea being that this would heal.
Mar 2013 - abscess which when drained became a fistula. From them till now I have 8 fistula holes.
Saw surgeon yesterday who said he can remove the fistulas but I have got to have a stoma as a rejoin is too dangerous.
So I have two options - loop ileostomy which could be reversed in 1-2 years OR an end ileostomy which is essentially permanent but could be reversed but its a very big op to do so.
So?......... Which ileostomy is best? Has anyone had an end ileostomy reversed?
How do I make the decision? The surgeon basically wouldn't be pinned down on which to have although he said the end ileostomy would have less potential for complications such as fistulas, abscesses etc.
I'm waiting to go onto Thalidominde which should sort the Crohns which would hopefully mean that further reversal surgery would have a better outcome due to Crohns being dormant so no inflammation and better chance of healing.
The surgery is going to be September probably 3rd week.
I'm in a total state trying to decide.
Quick history:
2009 I had a resection which split leading to peritonitis and an emergency ileostomy. I then developed 2 fistulas.
2010 - stoma reversed and fistulas removed. Became anaemic and then got a capsule camera stuck between 2 strictures.
2012- November went for resection - 2 days later it split, peritonitis, emergency ileostomy, icu.
Feb 2013 - stoma reversal due to massive output - 2 days later join split and emergency op to create a fistula with the idea being that this would heal.
Mar 2013 - abscess which when drained became a fistula. From them till now I have 8 fistula holes.
Saw surgeon yesterday who said he can remove the fistulas but I have got to have a stoma as a rejoin is too dangerous.
So I have two options - loop ileostomy which could be reversed in 1-2 years OR an end ileostomy which is essentially permanent but could be reversed but its a very big op to do so.
So?......... Which ileostomy is best? Has anyone had an end ileostomy reversed?
How do I make the decision? The surgeon basically wouldn't be pinned down on which to have although he said the end ileostomy would have less potential for complications such as fistulas, abscesses etc.
I'm waiting to go onto Thalidominde which should sort the Crohns which would hopefully mean that further reversal surgery would have a better outcome due to Crohns being dormant so no inflammation and better chance of healing.
The surgery is going to be September probably 3rd week.
I'm in a total state trying to decide.