Hello Everyone!!
I'm new here and decided to look for some support since nobody in my family or friends don't really understand what I'm going thru and some of you might be able to relate. You see everyone in my family don't understand that I suffer from all sorts of pain, not just pain in the gut or that I just go to the bathroom a lot, I suffer in everyway it's mentally draining and I just wish people would stop saying you got to watch what you eat. I get very annoyed when people in my family tell me have some of this, don't eat this and they act like they are some miracle doctors. They don't see what I really go thru like me running to the bathroom like 5 to 20 times a day or I spend up to several hours in the bathroom at one time because it's like my anal is a pipe or faucet and I can't stop pooping with category 10 pain or before it hits me and I can't move because of the abdominal pains and cramps I get or when I'm driving I'm scrambling to find a bathroom because I might just shit myself or when I have an urge to go the bathroom poop doesn't come out of my butt but muck, slim and blood comes out and its all topped off by me puking bile in the mornings or puking the dinner, lunch etc. I had. I'm tired of this, tired how I feel and I'm getting worse not better. I just don't think I can beat this let alone manage it.
I was diagnosed with Crohns in 2000 and noticed signs of this in 1998 when I kept going to the Hospital after seeing pools of blood in the toilet bowl. It took 2 years to get diagnosed and I've taken many different drugs in the 15 years. I'm getting worse and the only time I was in remission was probably 5 years ago for a short time of 6 months. I'm not scared of dying if I die from this. I won't suffer anymore if I go.... This is torture!!!! Problem I have is I have a 3 year old daughter I want to see grow up. She is the joy of my life and she puts a smile on face even if I'm suffering. All I want is a quality of life anybody would want. I suffer everyday and I don't even have good days anymore like I once did when I was introduced to Humira injections but that stopped working for me. I'm currently on Entyvio and my 3rd injection is a week away and I'm not very positive about any of this or this drug. My specialist tells me I've taken every drug on the market and his hands are tied. I guess surgery will be soon approaching. So much more I want to say but I'll leave it that.
Cheers
I'm new here and decided to look for some support since nobody in my family or friends don't really understand what I'm going thru and some of you might be able to relate. You see everyone in my family don't understand that I suffer from all sorts of pain, not just pain in the gut or that I just go to the bathroom a lot, I suffer in everyway it's mentally draining and I just wish people would stop saying you got to watch what you eat. I get very annoyed when people in my family tell me have some of this, don't eat this and they act like they are some miracle doctors. They don't see what I really go thru like me running to the bathroom like 5 to 20 times a day or I spend up to several hours in the bathroom at one time because it's like my anal is a pipe or faucet and I can't stop pooping with category 10 pain or before it hits me and I can't move because of the abdominal pains and cramps I get or when I'm driving I'm scrambling to find a bathroom because I might just shit myself or when I have an urge to go the bathroom poop doesn't come out of my butt but muck, slim and blood comes out and its all topped off by me puking bile in the mornings or puking the dinner, lunch etc. I had. I'm tired of this, tired how I feel and I'm getting worse not better. I just don't think I can beat this let alone manage it.
I was diagnosed with Crohns in 2000 and noticed signs of this in 1998 when I kept going to the Hospital after seeing pools of blood in the toilet bowl. It took 2 years to get diagnosed and I've taken many different drugs in the 15 years. I'm getting worse and the only time I was in remission was probably 5 years ago for a short time of 6 months. I'm not scared of dying if I die from this. I won't suffer anymore if I go.... This is torture!!!! Problem I have is I have a 3 year old daughter I want to see grow up. She is the joy of my life and she puts a smile on face even if I'm suffering. All I want is a quality of life anybody would want. I suffer everyday and I don't even have good days anymore like I once did when I was introduced to Humira injections but that stopped working for me. I'm currently on Entyvio and my 3rd injection is a week away and I'm not very positive about any of this or this drug. My specialist tells me I've taken every drug on the market and his hands are tied. I guess surgery will be soon approaching. So much more I want to say but I'll leave it that.
Cheers
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