Hi, glad I found this forum. I have a 14 year old daughter who was diagnosed with Crohn's in May. Her only symptom was lack of growth (malnutrition and anemia as well) so it took a while to diagnose. Since she really wasn't suffering we decided to try the Specific Carbohydrate Diet instead of recommended Prednisone, etc. She has complied 100% and is doing great medically - blood work is normal and shows no inflammation.GI doc is happy, endocrinologist isn't too concerned yet because she has gained some weight/height. Still no puberty though.
The problem is that she has recently started losing her appetite for many of the SCD foods she can have. And she was a very picky eater to begin with, so her diet is very limited. She says that she literally feels sick when she tries to eat certain foods that she used to like (eggs, tuna, almond flour, the list goes on). Lately she's not getting enough calories (maybe 1500/day). We have considered deviating slightly from the diet, maybe including items from the IBD-AID diet or even Paleo. We would rather not risk it, however, until she has gone through puberty. Since she had nosymptoms in the past, we wouldn't know right away if the food affected her.
GI supports SCD but doesn't know enough about it to advise. Trying to get her to just eat more of the foods she DOES like, but she is one stubborn girl. Has anyone had an experience similar to this? Thanks for any info/advice!
The problem is that she has recently started losing her appetite for many of the SCD foods she can have. And she was a very picky eater to begin with, so her diet is very limited. She says that she literally feels sick when she tries to eat certain foods that she used to like (eggs, tuna, almond flour, the list goes on). Lately she's not getting enough calories (maybe 1500/day). We have considered deviating slightly from the diet, maybe including items from the IBD-AID diet or even Paleo. We would rather not risk it, however, until she has gone through puberty. Since she had nosymptoms in the past, we wouldn't know right away if the food affected her.
GI supports SCD but doesn't know enough about it to advise. Trying to get her to just eat more of the foods she DOES like, but she is one stubborn girl. Has anyone had an experience similar to this? Thanks for any info/advice!