Ok so I was taken off of Imuran because we thought I had an allergic reaction after being on it for months. Looking back I'm pretty sure it was just my first ever panic attack, although the ER said it was the swine flu, which my primary doc disagreed (I was sweating like crazy, shaking, crying and felt like my heart was just going to stop, mostly panic attack symptoms). But if I would have had a reaction to the Imuran wouldn't it have been shortly after I started taking it, not months into taking it and doing fine? I started it at the end of July begining of August I believe and the "attack" I had was in November.
A little background, I was on Imuran and Prednisone and was doing great. My GI at the time wanted to up my Imuran dose because I was right under the remission/working area on my blood test, only problem was my toxic level was right under the limit as well. I was moving to NY and my GI wasn't sure when I would get into another GI to make sure I was monitored, so he wanted me to wait to up my dose. Well I got up here and it took months before I could see a GI, I then had my attack and my primary docs took me off the Imuran and kept me on the Entocort only. I've had nothing but problems since then.
My new GI has decided that since its in my file that I'm allergic to Imuran that I am past any pill treatments and that I need to go straight to Remicade. I have to go see them tomorrow and I'm thinking about asking them to try the Imuran again. So my question is do you guys think I should try that route again since it seemed to work so well before and save the Remi for later when nothing else will work or should I just go to the Remi?
In the end I just want to feel better and not be so weak all the time. I want to eat normal again, stop loosing weight (I'm down to 100lbs again!!) and just have my life back again!
Thanks for any advice ya'll can give me!!
A little background, I was on Imuran and Prednisone and was doing great. My GI at the time wanted to up my Imuran dose because I was right under the remission/working area on my blood test, only problem was my toxic level was right under the limit as well. I was moving to NY and my GI wasn't sure when I would get into another GI to make sure I was monitored, so he wanted me to wait to up my dose. Well I got up here and it took months before I could see a GI, I then had my attack and my primary docs took me off the Imuran and kept me on the Entocort only. I've had nothing but problems since then.
My new GI has decided that since its in my file that I'm allergic to Imuran that I am past any pill treatments and that I need to go straight to Remicade. I have to go see them tomorrow and I'm thinking about asking them to try the Imuran again. So my question is do you guys think I should try that route again since it seemed to work so well before and save the Remi for later when nothing else will work or should I just go to the Remi?
In the end I just want to feel better and not be so weak all the time. I want to eat normal again, stop loosing weight (I'm down to 100lbs again!!) and just have my life back again!
Thanks for any advice ya'll can give me!!