Hi all. As some of you know I was quite convinced that I had a bladder fistula. They did they mri and the good news was no bladder involvement the bad news was the gi wanted me to take the mri disks to the surgeon for his comments. Turns out that they did the wrong kind of mri to check for a fistula to the bladder however the one they did showed another flipping abscess (very small) and a very long sinus track running up along my back bone.
Surgeon says it is too small but to deal with eua - he would not find it but it is a clear indication that things are just getting worse down there. If we wait it will be fistula 4 with 3 setons dangling out of me. There seems to be some concern about proximity of the tract to my spine.
They are sending me for a different scan then will decide if it is worth it to try a different med or go straight to the colostomy. Due to a severe anal stricture the surgeon says it is unlikely he could hook it back up again in the future.
logically I know the bag would fix these endless fistula issues but it is still so upsetting. Just looking for someone who understands to say it will be ok. Gotta be strong where the kids can see me but I can be honest here.
Surgeon says it is too small but to deal with eua - he would not find it but it is a clear indication that things are just getting worse down there. If we wait it will be fistula 4 with 3 setons dangling out of me. There seems to be some concern about proximity of the tract to my spine.
They are sending me for a different scan then will decide if it is worth it to try a different med or go straight to the colostomy. Due to a severe anal stricture the surgeon says it is unlikely he could hook it back up again in the future.
logically I know the bag would fix these endless fistula issues but it is still so upsetting. Just looking for someone who understands to say it will be ok. Gotta be strong where the kids can see me but I can be honest here.