Hi guys this is my second post so I've no idea what I’m doing!
I took ill in April 2012 with diarrheal vomiting extreme abdominal pain right side and left lower. I knew something serious was wrong as I couldn’t eat a bite and I felt awful and slept all day and night if the pain would let me. I was then admitted to hospital with a suspected appendicitis the Doctor gave me 10mg of Morphine and this still didn’t help. Initially they thought it was renal so they scanned my kidneys and bladder and done a lot of urine tests. At this point I was able to keep water down so I wasn’t overly dehydrated so I didn’t need a drip. They let me home after three days in and the following day I ended up back in a+e with the pain and this time they seemed to take me more seriously they ran more blood tests but they saw nothing. They let me home again undiagnosed. I continued to get worse and then I started bringing up water and blood in the stool so I went to a different hospital, they sent me home from a+e three times and said that there is nothing wrong with me as my x-rays were fine and my blood tests were ok. Another time I went back into casualty and because I was so badly dehydrated they couldn’t get a vein so they kept me. Eventually they got blood and it showed elevated CO2 levels and low enzyme levels. They got me rehydrated on the drip and done a small bowel series which showed up nothing. I was then sent home after I was rehydrated. So I went back to a+e and they kept me again this time they seemed to be more understanding and referred me to a GI (who I’m still with) over the following months he performed 3 colonoscopies, two endoscopies, MRI scan (without dye as they couldn’t get a vein) CT scan with dye and a pill cam test. They all came back clear however the only test that seen my small bowel properly was the pill cam and it ran out of battery!!!! Two weeks ago my GI said he can’t find any IBD but I've begged him to keep me on and do the pill cam test again. He thinks I have severe IBS, but I have so many symptoms that don’t add up such as weight loss, bleeding, vomiting etc. I also have begged him so a laparoscopy and he said he will not do it.
I’ve been taken of my pain killers now (tramadol and oxynorm max daily dose) as they do not think I need them.
I have had to withdraw from uni as I can’t move from day to day and I am so weak.
I’m in hell as I am convinced it has to be IBD as my cousin has it and I've been going through the exact same thing.
Can anyone please shed some light on this?
All I can rely on is that the GI has missed something.
I took ill in April 2012 with diarrheal vomiting extreme abdominal pain right side and left lower. I knew something serious was wrong as I couldn’t eat a bite and I felt awful and slept all day and night if the pain would let me. I was then admitted to hospital with a suspected appendicitis the Doctor gave me 10mg of Morphine and this still didn’t help. Initially they thought it was renal so they scanned my kidneys and bladder and done a lot of urine tests. At this point I was able to keep water down so I wasn’t overly dehydrated so I didn’t need a drip. They let me home after three days in and the following day I ended up back in a+e with the pain and this time they seemed to take me more seriously they ran more blood tests but they saw nothing. They let me home again undiagnosed. I continued to get worse and then I started bringing up water and blood in the stool so I went to a different hospital, they sent me home from a+e three times and said that there is nothing wrong with me as my x-rays were fine and my blood tests were ok. Another time I went back into casualty and because I was so badly dehydrated they couldn’t get a vein so they kept me. Eventually they got blood and it showed elevated CO2 levels and low enzyme levels. They got me rehydrated on the drip and done a small bowel series which showed up nothing. I was then sent home after I was rehydrated. So I went back to a+e and they kept me again this time they seemed to be more understanding and referred me to a GI (who I’m still with) over the following months he performed 3 colonoscopies, two endoscopies, MRI scan (without dye as they couldn’t get a vein) CT scan with dye and a pill cam test. They all came back clear however the only test that seen my small bowel properly was the pill cam and it ran out of battery!!!! Two weeks ago my GI said he can’t find any IBD but I've begged him to keep me on and do the pill cam test again. He thinks I have severe IBS, but I have so many symptoms that don’t add up such as weight loss, bleeding, vomiting etc. I also have begged him so a laparoscopy and he said he will not do it.
I’ve been taken of my pain killers now (tramadol and oxynorm max daily dose) as they do not think I need them.
I have had to withdraw from uni as I can’t move from day to day and I am so weak.
I’m in hell as I am convinced it has to be IBD as my cousin has it and I've been going through the exact same thing.
Can anyone please shed some light on this?
All I can rely on is that the GI has missed something.