Hello all,
So I've been in the hospital since Thursday because everything kind of fell apart. The stomach, fistulas, ahttp://www.crohnsforum.com/newthread.php?do=newthread&f=2nd skin infection problems all came to a head at once and when I went to my doctor Thursday I think I felt the worst that I've ever felt. The pain was so bad that once they got me into the hospital and set up with an IV, the morphine didn't even really do it. They now have me on the "next step up" pain killer (which does do it :ybatty: ).
So tomorrow we're having a serious conversation about doing a surgery called a diverting ileostomy (or however that is spelled). That's where they temporarily divert my bowels into an ostomy bag for a few weeks (at least until after my next Tysabri infusion) to give everything a rest and let the medicine work unimpeded. I'm torn. On the one hand, I'm nervous about any surgery. On the other hand, this has been a year and a half long odyssey of trial and failure to find a new medicine and I really want this Tysabri to WORK, and if this surgery could help...then maybe its worth it. I mean, I trust the surgeon, she's really good. Its also laproscopic so the recovery won't be so bad...
Anyway...I mostly am just posting this to get some cyber-hugs. It HAS NOT been a good week.
Erin
So I've been in the hospital since Thursday because everything kind of fell apart. The stomach, fistulas, ahttp://www.crohnsforum.com/newthread.php?do=newthread&f=2nd skin infection problems all came to a head at once and when I went to my doctor Thursday I think I felt the worst that I've ever felt. The pain was so bad that once they got me into the hospital and set up with an IV, the morphine didn't even really do it. They now have me on the "next step up" pain killer (which does do it :ybatty: ).
So tomorrow we're having a serious conversation about doing a surgery called a diverting ileostomy (or however that is spelled). That's where they temporarily divert my bowels into an ostomy bag for a few weeks (at least until after my next Tysabri infusion) to give everything a rest and let the medicine work unimpeded. I'm torn. On the one hand, I'm nervous about any surgery. On the other hand, this has been a year and a half long odyssey of trial and failure to find a new medicine and I really want this Tysabri to WORK, and if this surgery could help...then maybe its worth it. I mean, I trust the surgeon, she's really good. Its also laproscopic so the recovery won't be so bad...
Anyway...I mostly am just posting this to get some cyber-hugs. It HAS NOT been a good week.
Erin