On mon. I went to the ER after vomiting bile to go along with grey stools and the off and on bloody diarrhea/bloody mucous, dizziness, plus that 'burning' feeling in the tummy. They took basic bloodwork - normal. Took x-rays - liver and gallbladder normal, no kidney stones. That left the ER doc clueless about the cause of vomiting/grey stools.
She was completely convinced I had hemorroids, but after a rectal exam, said she didn't see or feel any, and thought she felt a small fissure deep back.
She proceeded to ask if I had any rashes - I said yes, I have a mysterious one. She asked if I had psoriasis - I said yes, that has been flaring on me. She asked if I had joint pain - I said yes, I am always achy especially in the low back. (when I was released the next day I asked why she was asking about these, she said because they are related to a Crohn's flare).
I was scheduled for an emergency colonoscopy and gastroscopy on friday. Thankfully I was given plenty of sedation (and before they procedures, I asked the doctor to be sure to give me more before the colonoscopy so that I do not wake up - he did). Sadly my actual GI could not do it because he is away until the 29th.
BUT, I am BEYOND upset...just as i'm about to get started he said "i'm testing for Celiac" and argued "it will be present". THIRD TIME IN A ROW this has happened, where the specialist was more worried about proving I don't have Celiac than figuring out what else I have. There is NO WAY there is ANY evidence of Celiac in me - I've been gluten-free 8.5 years!
Even worse, he says "you can't take treatment anymore" after I told him the only thing that makes me better is Prednisone and i'll go 4-6 months feeling 100%, nothing else works. Then the nurse after my scopes even told me not to take it.
He didn't even speak with me after the procedures, just told the nurse to tell me there was nothing there and that I'd be getting a phone call to see him for results in two months...but I'm going to find out if I can see my actual GI instead.
In the mean time, I feel like i'm dying. I vomited again on friday from eating. I vomiting twice yesterday WHILE eating but was able to force it back down. I've been forcing myself to eat due to no appetite - even salad and rice makes me feel full after a few bites. Stools are still grey. Even liquids make me have diarrhea.
I cannot see my family doctor until this coming Wednesday, and will beg and cry if I have to to get Prednisone. No way I can keep surviving feeling like this.
How can I have every sign of Crohn's but not have it??
She was completely convinced I had hemorroids, but after a rectal exam, said she didn't see or feel any, and thought she felt a small fissure deep back.
She proceeded to ask if I had any rashes - I said yes, I have a mysterious one. She asked if I had psoriasis - I said yes, that has been flaring on me. She asked if I had joint pain - I said yes, I am always achy especially in the low back. (when I was released the next day I asked why she was asking about these, she said because they are related to a Crohn's flare).
I was scheduled for an emergency colonoscopy and gastroscopy on friday. Thankfully I was given plenty of sedation (and before they procedures, I asked the doctor to be sure to give me more before the colonoscopy so that I do not wake up - he did). Sadly my actual GI could not do it because he is away until the 29th.
BUT, I am BEYOND upset...just as i'm about to get started he said "i'm testing for Celiac" and argued "it will be present". THIRD TIME IN A ROW this has happened, where the specialist was more worried about proving I don't have Celiac than figuring out what else I have. There is NO WAY there is ANY evidence of Celiac in me - I've been gluten-free 8.5 years!
Even worse, he says "you can't take treatment anymore" after I told him the only thing that makes me better is Prednisone and i'll go 4-6 months feeling 100%, nothing else works. Then the nurse after my scopes even told me not to take it.
He didn't even speak with me after the procedures, just told the nurse to tell me there was nothing there and that I'd be getting a phone call to see him for results in two months...but I'm going to find out if I can see my actual GI instead.
In the mean time, I feel like i'm dying. I vomited again on friday from eating. I vomiting twice yesterday WHILE eating but was able to force it back down. I've been forcing myself to eat due to no appetite - even salad and rice makes me feel full after a few bites. Stools are still grey. Even liquids make me have diarrhea.
I cannot see my family doctor until this coming Wednesday, and will beg and cry if I have to to get Prednisone. No way I can keep surviving feeling like this.
How can I have every sign of Crohn's but not have it??