I was diagnosed with Crohn’s last fall. Initial treatment was to use Budesonide and Pentasa. Inflammation was still high and only minimal improvement in symptoms. On June 4, I started Remicade. I completed the 3 infusion induction phase on July 21, and my next infusion is scheduled for Sept 16.
I didn’t expect Remicade to magically fix all my problems at once. However, I absolutely didn’t expect things to get worse. I use an app to track symptoms/diet, and I’ve had diarrhea 50% of the time since July. I had labs done last week, and now my inflammation levels are higher than they’ve ever been. Took a COVID test yesterday and am waiting on results to rule that out.
My doctor has put me back on Budesonide and ordered more tests. I’ve been on Pentasa continually since December.
Has anyone else experienced worsened symptoms after being on Remicade?
Thanks for any insight. This disease is really wearing me down emotionally.
I didn’t expect Remicade to magically fix all my problems at once. However, I absolutely didn’t expect things to get worse. I use an app to track symptoms/diet, and I’ve had diarrhea 50% of the time since July. I had labs done last week, and now my inflammation levels are higher than they’ve ever been. Took a COVID test yesterday and am waiting on results to rule that out.
My doctor has put me back on Budesonide and ordered more tests. I’ve been on Pentasa continually since December.
Has anyone else experienced worsened symptoms after being on Remicade?
Thanks for any insight. This disease is really wearing me down emotionally.