Hi, my name is Sarah. I'm 24 years old (Diagnosed at 23)
I have Crohn's disease of the colon.
Here is my story if you would like to read
Basically in about March 2015 I developed these painful ulcers in my mouth that just kept coming back. Went to 5 different doctors and a dentist... A few gave me a prescription for orabase and told me they'd clear up. One doctor told me it was iron deficiency. The others told me it was because of stress
I took iron supplements and started eating gluten free products. Iron supplements were horrible as soon as I became constipated with severe abdominal cramps. I could not stop crouching at work and it felt like someone was stabbing me. By this time my ulcers were worse - about 20 to 30 inside my mouth.
Night sweats occurred, my sheets, pillows and doona were absolutely drenched. I woke up every 2 hours to find I was sweating like a pig and had to have a shower all the time. I wasn't eating anything but yoghurt and custard because my ulcers made me feel like I was chewing glass whenever I ate. I was sleeping constantly, I recall having slept 72 hours once only getting up to go to the bathroom, shower and try to eat.
On my 23rd birthday, I was admitted to hospital where I stayed for 2 weeks with IV fluids and an iron transfusion. I don't think they believed that I couldn't eat though cause the nurses kept feeding me meat and vegetables :/ I couldn't talk - I had to write down what I wanted to say. My mum came down to visit me and gave me the best soup I downed that whole thing, I was starving! I went from 50kg to 41kg.
After a colonoscopy I was diagnosed with Crohn's Disease. It feels so much better when you know exactly what's wrong with you. I was put on 50mg prednisone. After the prednisone was done, I was put on 25mg 6MP and sulphasalazine.
Eventually 6MP made my white blood cells low so I was asked to just take sulphasalazine. Same thing happened unfortunately. After being pretty much on no medication for a few months, I was given Budesonide 6mg. Doesn't really help much
Thanks for reading
I have Crohn's disease of the colon.
Here is my story if you would like to read
Basically in about March 2015 I developed these painful ulcers in my mouth that just kept coming back. Went to 5 different doctors and a dentist... A few gave me a prescription for orabase and told me they'd clear up. One doctor told me it was iron deficiency. The others told me it was because of stress
I took iron supplements and started eating gluten free products. Iron supplements were horrible as soon as I became constipated with severe abdominal cramps. I could not stop crouching at work and it felt like someone was stabbing me. By this time my ulcers were worse - about 20 to 30 inside my mouth.
Night sweats occurred, my sheets, pillows and doona were absolutely drenched. I woke up every 2 hours to find I was sweating like a pig and had to have a shower all the time. I wasn't eating anything but yoghurt and custard because my ulcers made me feel like I was chewing glass whenever I ate. I was sleeping constantly, I recall having slept 72 hours once only getting up to go to the bathroom, shower and try to eat.
On my 23rd birthday, I was admitted to hospital where I stayed for 2 weeks with IV fluids and an iron transfusion. I don't think they believed that I couldn't eat though cause the nurses kept feeding me meat and vegetables :/ I couldn't talk - I had to write down what I wanted to say. My mum came down to visit me and gave me the best soup I downed that whole thing, I was starving! I went from 50kg to 41kg.
After a colonoscopy I was diagnosed with Crohn's Disease. It feels so much better when you know exactly what's wrong with you. I was put on 50mg prednisone. After the prednisone was done, I was put on 25mg 6MP and sulphasalazine.
Eventually 6MP made my white blood cells low so I was asked to just take sulphasalazine. Same thing happened unfortunately. After being pretty much on no medication for a few months, I was given Budesonide 6mg. Doesn't really help much
Thanks for reading
