16, diagnosed with Crohn's June 6th 2011.
My doctor put me on Remicade about a year and a half ago because I was having a lot of fistulas. It worked for a while and the fistulas came back. I was also having a lot of side effects. It wasn't as bad at first but it started getting worse.
I started having difficulty breathing, chest pains, rapid heart beat, felt like I was gonna pass out (sometimes I actually did), dizziness, and nausea. It happened at anytime, not just right after I got my Remicade infusion. But it was only every now and then. A year later, I had a really bad case of it. I had to be carried onto a stretcher into the ambulance. The doctors at the e.r. said I had a panic attack. But after that, it started happening more and more. I've had 4 panic attacks since then within about 6 months. This last one was even worse. The doctors say its because of stress and anxiety but when I have an attack, I'm happy and not sad at all.
My doctor thought it was side effects of the Remicade. So she switched me to Humira about a month ago. But I had my really bad panic attack the night after I got my starter dose of my Humira.
I also had an urinary tract infection before I had started my Humira. I've researched that you're not supposed to have one and start your Humira. I told my doctor that but she didn't run a test to make sure before she started me on it. Now it seems like it's gotten worse. But when I went to the emergency room for my attack the night after my starter dose, I told them about it and they found out that I did have one. I've had it for about 5 months, been on two different antibotics, and it still won't go away. The antibotics they put me on cause me to go into a flare up and start bleeding for the first time in a year.
Almost every day, I have a lot of different other side effects. My chest still hurts, I have difficulty breathing, feel like I'm gonna pass out, and like I'm gonna throw up. I get this sharp pain in the back of my head, everything gets dizzy, and I feel like I'm here but I'm really not (If that makes any sense). I have a hard time trying to describe it. I just feel weird. I lose control of my body and I can't speak. My hands, feet, and face go numb and tingly a lot. I have a hard time remembering things. People have told me that it may be nervous system problems which is a side effect of the medicine.
But the problem is, nobody believes me. My mom and my doctors think I'm just making all of this up for "attention". When that's not the case at all. I really do feel like this but I don't talk about it since no one believes me. I was just wondering if anyone else is having these problems and can help me figure out what's wrong with me. Any comments would be greatly appreciated!!
My doctor put me on Remicade about a year and a half ago because I was having a lot of fistulas. It worked for a while and the fistulas came back. I was also having a lot of side effects. It wasn't as bad at first but it started getting worse.
I started having difficulty breathing, chest pains, rapid heart beat, felt like I was gonna pass out (sometimes I actually did), dizziness, and nausea. It happened at anytime, not just right after I got my Remicade infusion. But it was only every now and then. A year later, I had a really bad case of it. I had to be carried onto a stretcher into the ambulance. The doctors at the e.r. said I had a panic attack. But after that, it started happening more and more. I've had 4 panic attacks since then within about 6 months. This last one was even worse. The doctors say its because of stress and anxiety but when I have an attack, I'm happy and not sad at all.
My doctor thought it was side effects of the Remicade. So she switched me to Humira about a month ago. But I had my really bad panic attack the night after I got my starter dose of my Humira.
I also had an urinary tract infection before I had started my Humira. I've researched that you're not supposed to have one and start your Humira. I told my doctor that but she didn't run a test to make sure before she started me on it. Now it seems like it's gotten worse. But when I went to the emergency room for my attack the night after my starter dose, I told them about it and they found out that I did have one. I've had it for about 5 months, been on two different antibotics, and it still won't go away. The antibotics they put me on cause me to go into a flare up and start bleeding for the first time in a year.
Almost every day, I have a lot of different other side effects. My chest still hurts, I have difficulty breathing, feel like I'm gonna pass out, and like I'm gonna throw up. I get this sharp pain in the back of my head, everything gets dizzy, and I feel like I'm here but I'm really not (If that makes any sense). I have a hard time trying to describe it. I just feel weird. I lose control of my body and I can't speak. My hands, feet, and face go numb and tingly a lot. I have a hard time remembering things. People have told me that it may be nervous system problems which is a side effect of the medicine.
But the problem is, nobody believes me. My mom and my doctors think I'm just making all of this up for "attention". When that's not the case at all. I really do feel like this but I don't talk about it since no one believes me. I was just wondering if anyone else is having these problems and can help me figure out what's wrong with me. Any comments would be greatly appreciated!!