Hi parents,
I would like to get your opinions on this topic.
My son was diagnosed Crohn's in 2016 when he was 15. He has developed a peri-anal fistula. His GI has suggested remicade at the time and we have refused taking this strong medicine. Instead, we were trying diet and he was taking probiotics regularly as an alternative.
In the past two years, he seemed in remission until he was in flare three months ago. He was very sick for a week and he went okay again.
We have been consistently getting Fecal test every three months to monitor his inflammation level. He was around 50 at the beginning of the remission and he went 1000 at his flare three months ago. And then his FC level went down to 300 for the past three months without any symptoms, which is kind of high compare to normal FC level. I was so worried because we have no medicine to take (this is our own choice, can't blame anyone else). Knowing that he has inflammation somewhere but I am still hoping that miracle can happen and his condition is not so serious.
His fistula has never healed and keep draining puss. I guess that some degree of inflammation has been developed there too. He is a stubborn kid and he refuse to take antibitotics.
The question / theory / hypothesis I would like to raise is this:
1. FC results could get higher for kids with Perianal fistula.
2. Kids in remission can still get high level FC assuming that fistual puss gets collected in the sample.
3. Kids with perianal fistula might not have high inflammation in their bowel even FC is high, because the inflammation tested out might be from the fistula puss.
I know these theories might sound dumb but as a parent, this is only thing I am hoping for my son. Crohn's is a mysterious disease and as a parent, the only thing I can do is taking a wild guess.
Thanks for reading my post and hope not waste your time.
Shawn's dad.
I would like to get your opinions on this topic.
My son was diagnosed Crohn's in 2016 when he was 15. He has developed a peri-anal fistula. His GI has suggested remicade at the time and we have refused taking this strong medicine. Instead, we were trying diet and he was taking probiotics regularly as an alternative.
In the past two years, he seemed in remission until he was in flare three months ago. He was very sick for a week and he went okay again.
We have been consistently getting Fecal test every three months to monitor his inflammation level. He was around 50 at the beginning of the remission and he went 1000 at his flare three months ago. And then his FC level went down to 300 for the past three months without any symptoms, which is kind of high compare to normal FC level. I was so worried because we have no medicine to take (this is our own choice, can't blame anyone else). Knowing that he has inflammation somewhere but I am still hoping that miracle can happen and his condition is not so serious.
His fistula has never healed and keep draining puss. I guess that some degree of inflammation has been developed there too. He is a stubborn kid and he refuse to take antibitotics.
The question / theory / hypothesis I would like to raise is this:
1. FC results could get higher for kids with Perianal fistula.
2. Kids in remission can still get high level FC assuming that fistual puss gets collected in the sample.
3. Kids with perianal fistula might not have high inflammation in their bowel even FC is high, because the inflammation tested out might be from the fistula puss.
I know these theories might sound dumb but as a parent, this is only thing I am hoping for my son. Crohn's is a mysterious disease and as a parent, the only thing I can do is taking a wild guess.
Thanks for reading my post and hope not waste your time.
Shawn's dad.