Is Stelara failing me?

[Kannassee]

I started Stelara last August, and to my surprise my FCP levels have been going up….
It’s not very bad yet but it’s not getting better.

I will try to attach a snapshot of my results…..

Higher than 500 before Remicade….after starting Remicade in 6 months FCP was down to low fifties, after stopping Remicade it went up to 200 and started Stelara in August, but now the FCP levels are higher than 300…..not a very good trend I think.

Maybe it needs more time? In their website it says that results are noticeable after 6 weeks.

 

[my little penguin]

dose ? And how often are you getting Stelara?
Everyone is different
My child’s FCP went up (160) when they pushed Stelara to every 6 weeks at 90 mg
And back down to below 15 when he gets it’s every 4 weeks 90 mg
Every 8 weeks did next to nothing for him

 

[Kannassee]

I am getting Stelara every 8 weeks. The dosage is 90 mg.
I have the feeling that after the injection my symptoms get better, but after maybe 5 weeks my symptoms tend to reappear.
I also noticed that it may take more time for it to work.
Can they measure the Stelara levels the same ways they measured the Infliximab levels?

 

[my little penguin]

They can measure Stelara levels
His was at a “good” level but fcp and bloodwork told a different story

 

[Pilgrim]

I posted this elsewhere but in our experience Stelara took 12-16 months to be therapeutic at 4 week dosing.

In the first 6 months her fcal wasn't improving.

 

[Scipio]

I am getting Stelara every 8 weeks. The dosage is 90 mg.
I have the feeling that after the injection my symptoms get better, but after maybe 5 weeks my symptoms tend to reappear.
I also noticed that it may take more time for it to work.
Can they measure the Stelara levels the same ways they measured the Infliximab levels?

Stelara worked pretty quickly for me - a few weeks. I am currently on the standard dose of 90 mg every 8 weeks, and like you, symptoms (mostly pain in my case) start to come back during the last two weeks of the 8 week cycle.

I had the trough blood level of Stelara measured once, and it was within the published recommended range. So since the pain is not that bad, and I didn't have any anti-drug antibodies, I've stayed on the standard dose.