• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Is THIS what Crohn's feels like!?

Okay, so I was just diagnosed with having Crohn's last December, but have been feeling the symptoms for a while. But my symptoms were oddly specific.

The first time, it happened right after graduating from high school. My family took a trip to Italy and slowly over the first day there, I felt worse and worse. I told my parents I had a stomach ache and they told me I was overreacting. They dragged me around sightseeing and made me climb to the top of a church in Venice. I was just about ready to kill them. I slept the entirety of the next day and didn't wake up until dinner. After two days of pain so intense I couldn't stand to breathe, I was able to move around a bit more. By day 4, I was feeling fine and eating delicious Italian cuisine.

For the lolz, please enjoy this picture of 17 year old me, at the top of Basilica San Marco, cursing my parents for dragging me up those stairs while I felt like shit.

During my junior year of college, right around Halloween, it happened again. Initially, I thought it was mittelshmerz, as I was right about that time in my cycle. But over the course of the day the pain got worse and worse and worse. One of my professors had to drive me to the health center because I couldn't get there on my own. After a battery of tests, there was no answer. The intense pain lasted two full days and then slowly faded away.

I didn't connect that incident to the first until it happened AGAIN during the January of my senior year. I ended up in the hospital but still received no diagnosis. The one thing all of these had in common is that they happened RIGHT when I ovulated, the intense pain always lasted two days, and then faded over a third.

I had two more attacks in the November and December of that same year, which finally got me into the doctor and a diagnosis of Crohn's disease. I went on Pentasa and was feeling fine. I was getting into great shape, doing P90X, running regularly.

Then, I stupidly decided after 10 months that I wanted a medicine I didn't have to take 4 times a day. He put me on sulfasalazine and I took it for about a month.

I should have known something was wrong. One day while I was running, I felt a soreness in my lower abdomen, but wrote it off as nothing. A few days later, I ovulated and was again in crippling pain. I assumed, like the others, I would be unable to move for two days but able to regain my life by day four.

But I haven't gotten better. I'm no longer in crippling pain, but a general feeling of malaise. My lower abdomen is almost constantly dully sore, made worse by eating. I can't run at all and even low impact activity like the elliptical I can only keep up with for about 30 minutes before I need to stop. I started doing yoga, but am so tired and sluggish that it's hard for me to get up and make myself.

I'm still figuring out how to eat... I've sort of come around to eating once per day then being too sick to eat the rest of the day. My dinner this evening consisted of orange juice, a piece of chocolate from my friend's candy bar, and a mint that for some unknown reason they were giving out at the movie theatre.

This is the first time since my diagnosis that I feel like I'm actually sick. And I hate it. And I know it isn't even that bad.

I just... wanted to put that out there. This is the very first time I've put that story together... thank you, if you've taken the time to read this.
Last edited:

Crohn's 35

Inactive Account
Hi Brooklyn! :welcome: to the forum. Your cycle of pain and timing sounds like mine it took many times of hospital visits and pain to find out on my days my crohns was really bad and caused swelling so much I was obstructing, the worst pain ever. Everyone has different symptoms when flaring but mostly pain is the major point. Fatigue and sore joints are a big thing with Crohns. I had chocolate last week and that was the last thing I ate before my major pain started. It is best to avoid it , a fat that is hard to digest.

A low residue diet is said to help many others and avoiding dairy is one thing I have to do too. Some months are not as bad but most are the worst and after my days I have mucous loss... A vicious cycle. You many have to be on something stronger, Pentasa is in the mild class drugs. I would see your Gi as soon as you can, for an update of your crohns. Take care, we are here to help!
Hey Pen... thanks for the welcome. I've been lucky so far, I even saw the pictures from the capsule endoscopy that my doctor did that the disease isn't very far advanced. I don't even have the big symptoms... no diarrhea or weight loss or obstructions so far. I've only been back on the Pentasa for a few weeks so I want to see if I can continue to recover from the sulfasalazine before I see my doc again. Luckily he's a doc whose seen three generations of my family so he knew that autoimmune diseases run in my family. (Mother has psoriasis, teenage brother has some strange pre-arthritic thing going on with his fingers, aunt on the other side of my family has crohn's) so he found it early... previously the worst I've had to deal with is excessive gas which is mildly painful and more embarrassing than anything else... but I'm scared about it getting worse.
I can totally understand,the feeling. I have yet to be diagnosed with anything. But not eating but once a day is something I am still struggling with as I type. I went to the movies tonight and my gf bought chocolate too (my favorite treat). Well it tasted awesome but I now have bad pains again.. I hope you find a good diet to stick to and a better medicine. Take care
Hello Brooklyn and welcome to the forum.
My own initial symptoms were not as bad to be honest. Mostly very watery bloody diarrhoea and very frequent at that...
Try not get scared about this disease Brooklyn.....but get better informed about it.
You have landed in a great place here..with lots of experienced people who are very helpful and friendly..:)
Take care..