I was posting in the undiagnosed group's forum for a while back in 2014 when my gastro thought I might have Crohn's. I met some wonderful people experiencing unpleasant things with their health. I am grateful to all of those people who supported each other and myself while we were/are trying to figure out what's going on.
I have a complicated question but I need to fill in some blanks first. I'm notorious for long stories, sorry.
I recently got a new primary care provider (doctor or GP for non-US people). My previous one resigns from her practice in about a week. Anyhow, one of the first things he asked me was about my gastrointestinal issues and I told him I'd basically given up on exploration, as it were.
In 2014, I had both endoscopy and colonoscopy. All they found was gastritis (non h. pylori). About two months later I nearly had a stroke or heart attack (not sure which because I got medical attention as BP had sky-rocketed and that's not normal for me - that was low potassium). I then experienced total bowel obstruction, later reduced down to partial obstruction. I couldn't even pass water through my system. Before this happened, I found out I wasn't viable for the pill cam. It turns out I had an adhesion (previous cancer surgery from 2005). Now, I realize this isn't Crohn's, or probably isn't, but my visit with my new PCP was interesting. He prefaced what he had to say with "I don't like to speak ill of other doctors" - he was referring to the gastroenterologist who couldn't find anything wrong with me. But then he printed off the pathology report from 2014 and a doctor had signed off "BX all okay. Keep up fluids." Yet, further up the page the findings were esophagitis in three areas and gastritis non- h. pylori. The razor blades I started experiencing in my gut, I thought was the gastritis. Nope. My new doc says it's the esophagitis and he explained what it was and how it progresses. Further personal research indicates what Barrets esophagus is and I'm wondering if this might be tied into these weird gutsaches I now get which have the feeling of the onset of diarrhea (you know those awful cramps) and yet I don't have a result. it's like I get diarrhea like bouts that don't go anywhere for a couple of days. The other issue is a little embarrassing, but what the hey...I had a child in 2011 and began experiencing mild fecal incontinence, so every time I get the diarrhea like guts ache, I start leaking too. Not like you might think though - more a burning. So, I'm wondering with my insides just opened up on this post - no pun intended - is does anyone else have esophagitis, gastritis and problems with diarrhea-like guts ache (with wind etc) and then they can't actually do anything about it? I've looked up (google is sometimes your friend) the symptoms but as soon as I mention fecal incontinence, all the searches focus on that and that's a symptom relating from child birth, but it's more noticeable during/after the guts ache. Also, sometimes when I do evacuate, I can't fully evacuate and this has become a regular problem (again, no pun intended). I'm wary of seeing a gastro at the moment because my last one was obviously fairly useless and the ER was the place I obtained help. I'm not crippled in pain right now (been going on and off, but still waiting to get the rest out). I don't have celiac sprue and the endoscopy didn't show colitis (I have the results that show they don't). Swallowing some foods is becoming harder too. I never knew the cause of that until my new doctor told me the rest of the dx. He did mention OTCs and I mentioned I take triphala when I get the razor blades, which I haven't had those in a while. I do get chest pain but don't notice reflux and am not formally dx'ed with GERD.
Thanks for being patient with me. I'm simply hoping to find someone with similar issues and if maybe the esophagitis might be tied up to what's going on with the diarrhea like pains, or whether I might be going to develop another adhesion and this is something else altogether. I am aware that Barrett's Esophagus can lead to other things down the road, but I'm not concerning myself with that right now. I'm 38.
I have a complicated question but I need to fill in some blanks first. I'm notorious for long stories, sorry.
I recently got a new primary care provider (doctor or GP for non-US people). My previous one resigns from her practice in about a week. Anyhow, one of the first things he asked me was about my gastrointestinal issues and I told him I'd basically given up on exploration, as it were.
In 2014, I had both endoscopy and colonoscopy. All they found was gastritis (non h. pylori). About two months later I nearly had a stroke or heart attack (not sure which because I got medical attention as BP had sky-rocketed and that's not normal for me - that was low potassium). I then experienced total bowel obstruction, later reduced down to partial obstruction. I couldn't even pass water through my system. Before this happened, I found out I wasn't viable for the pill cam. It turns out I had an adhesion (previous cancer surgery from 2005). Now, I realize this isn't Crohn's, or probably isn't, but my visit with my new PCP was interesting. He prefaced what he had to say with "I don't like to speak ill of other doctors" - he was referring to the gastroenterologist who couldn't find anything wrong with me. But then he printed off the pathology report from 2014 and a doctor had signed off "BX all okay. Keep up fluids." Yet, further up the page the findings were esophagitis in three areas and gastritis non- h. pylori. The razor blades I started experiencing in my gut, I thought was the gastritis. Nope. My new doc says it's the esophagitis and he explained what it was and how it progresses. Further personal research indicates what Barrets esophagus is and I'm wondering if this might be tied into these weird gutsaches I now get which have the feeling of the onset of diarrhea (you know those awful cramps) and yet I don't have a result. it's like I get diarrhea like bouts that don't go anywhere for a couple of days. The other issue is a little embarrassing, but what the hey...I had a child in 2011 and began experiencing mild fecal incontinence, so every time I get the diarrhea like guts ache, I start leaking too. Not like you might think though - more a burning. So, I'm wondering with my insides just opened up on this post - no pun intended - is does anyone else have esophagitis, gastritis and problems with diarrhea-like guts ache (with wind etc) and then they can't actually do anything about it? I've looked up (google is sometimes your friend) the symptoms but as soon as I mention fecal incontinence, all the searches focus on that and that's a symptom relating from child birth, but it's more noticeable during/after the guts ache. Also, sometimes when I do evacuate, I can't fully evacuate and this has become a regular problem (again, no pun intended). I'm wary of seeing a gastro at the moment because my last one was obviously fairly useless and the ER was the place I obtained help. I'm not crippled in pain right now (been going on and off, but still waiting to get the rest out). I don't have celiac sprue and the endoscopy didn't show colitis (I have the results that show they don't). Swallowing some foods is becoming harder too. I never knew the cause of that until my new doctor told me the rest of the dx. He did mention OTCs and I mentioned I take triphala when I get the razor blades, which I haven't had those in a while. I do get chest pain but don't notice reflux and am not formally dx'ed with GERD.
Thanks for being patient with me. I'm simply hoping to find someone with similar issues and if maybe the esophagitis might be tied up to what's going on with the diarrhea like pains, or whether I might be going to develop another adhesion and this is something else altogether. I am aware that Barrett's Esophagus can lead to other things down the road, but I'm not concerning myself with that right now. I'm 38.