Hi everyone. I've been living with IBD since 19, I'm 37 now. Never reached out to others like me before which I regret because reading everyone's stories even though sad certainly brings a sense of calmness knowing we are here for each other, I was just not one to ask for help I guess. I sure could of used it though. I started off with being diagnosed with UC in 1997, it was pretty severe. Was stubborn to get surgery so I suffered for 4 years thinking there would be a pill eventually that would make me better. But after 2 blood clots and many many accidents and years of max prednisone use, I finally gave in to having an ostomy. Life was so much better, I should have not waited. A year after I decided to go for a J-pouch. It's had its issues, especially when they told me I now will have chronic pouchitis, but a few days of cipro always took care of it and gave me a relief for a week or two. I got used to it and just didn't want to do the ostomy thing again. Put up with it till I noticed in early 2014 I was bleeding way more then usual. Eventually a trip to ER showed I had a hemoglobin of 39 , was scoped and told that unfortunatelyi have Crohns now. I was confused. I never even heard that you could have both but was told that what happened was that I had Crohn's all the time and was just misdiagnosed. It hasn't fully hit me till maybe 3 months after rediagnosis that its dejavu again. Numerous blood and iron infusions it got to 120 which I'm happy with. Only things I'm on are weekly Humira injections. They tried to sell me on MTX but I just didn't want to put that in my body after reading about it ( maybe I didn't read enough). I take warfarin to prevent clots also. Other then that the best thing I've found was meta-mucil, with out it my bm's are too watery. Got checked in December and my inflammation has gone down roughly 75% and I no longer bleed. But I can't get more then 1-2 hours with out needing to go again. It's frustrating. Especially when it's less then hourly. It's just mentally draining. I've gotton a couple partial blockages so it's hard to fine tune it. I take lomotil also to slow my system down but I don't want to take too much of that. Just once a day, occasionally twice. I tried some other drug to slow me down, it's a anti depressant but I stopped it since it didn't have much effect besides making me more tired. I keep my diet in check and do best I can trying to balance meta mucil and lomotil but I just go too dam often. Having no colon probably is to blame. Or my pouch isn't working well anymore. I don't want to go back to an ostomy. Just hope hope to find some people here with j- pouch and Crohns to give me some hope. It's been a struggle too long. I never complain to anyone really but hope here between fellow sufferers it's ok. Thanks to anyone who took the time to read my entire story, sorry it's hard to put 17 years on paper. God bless.