The more I read on these forums the more answers I find to the problems I'm having. And I had no idea they are most likely linked to Crohn's. I was diagnosed with Crohn's 4 years ago.Wow. I have Crohn's and TMJ. I didn't think they would be related, but maybe they are?
I was diagnosed a year ago with Crohn's, had surgery and am on pentasa and remicade, recently started with bad joint pain and jaw pain. Went to rhumetologist and he's thinking it may be remicade induced. More blood work ordered. This affects alot more than I imaginedI was just diagnosed with Crohn's Disease, but I have had stiffness and pain in my jaw for months now. My dentist said he didn't think it was TMJ so now I'm wondering if it's the Crohns that is doing it. Does anyone else have jaw issues?
He saw inflammatory joint issues in my hands, feet knees and shoulders. Strange that it came on this fast and thus hard, I could barely walk last week. I finally went to ER where they gave me a long acting steriod, helped alot. Now it's bearable. Little depressing thinking all this stems from Crohn's.i will look into all of your suggestions and really appreciate the feedback.It could be Remicade related, but like MLP said, they should also rule out Spondyloarthritis. Typically symptoms are morning stiffness, pain that gets better with movement and worse with rest and lower back pain. However, any joint can be involved, including the jaw.
For your jaw, seeing an oral and maxillofacial surgeon who specializes in jaw arthritis might be a good idea. It's generally one of two possibilities - TMJ dysfunction, which is functional pain. That is usually treated with a splint or PT.
Then there is TMJ arthritis, which is more serious. Inflammatory arthritis is treated with biologics like Remicade and Humira. Often MTX is added to give them a "boost." They also may do intraarticular steroid injections - injections into the joint. My daughter had those and they helped a LOT.
But the first step for jaw arthritis is usually an MRI to determine whether it is inflammatory or not. If it is, then they decide whether to increase or add systemic meds like Remicade or MTX or to treat with steroid injections.
When you saw the rheumatologist, did he/she see signs of inflammation in any of your joints? When you say joint pain, which joints hurt, besides your jaw?