In December my son’s right jaw, right in front of his ear, was hurting and then his cheek swelled up. His GI doc didn’t think it was connected to his crohn’s so we took him to the dentist and called his pcp. No answers were found/given and the swelling went away in a few days. Then, the end of Feb his left side did the same thing on Thursday, looked better by Monday morning, then swelled up again during the day. That night he started having chills and his temp was 102.3. 30 minutes after Tylenol it was 103.4 so we called the on call nurse and then took him to the ER. The ED was thinking it was either a gland or a lymph node and if it was a gland it may be infected so he prescribed Amox but told us to watch for him for 24 hours before starting them just in case. We started the antibiotic Wednesday morning after the swelling got worse and by Thursday morning the swelling was greatly reduced. He finished the antibiotics this Tuesday and had his infusion Wednesday.
The antibiotics seemed to be the answer but we still don’t know what it was. I keep wondering if it was actually an inflammatory fever he was running and the swelling was a lymph node and related to his Crohn’s. His GI doc has referred him to rheumatology. His labs have been trending towards inflammation for several months but every time we ask about it they just sorta blow us off. I’m actually wondering if the Avsola isn’t working very well anymore but they did go up on his dosage to try and get his calprotectin down. His sedrate has been in the 30’s, his Crp up from less than 1 to a little over 5, his platelets up to around 400. While none of these are really bad they have been trending up for a while, and his albumin has been trending down.
A weird detail: In December he began getting car sick on the highway. He normally gets car sick on back roads but not on the highway. Since December, he’s thrown up every time he’s been in the car. He started the antibiotic on a Wednesday morning. The very next day he went to his pcp for a followup from the ER and he did not get car sick on the way there or back. Yesterday, he went for his infusion and did not get sick. These are the 1st car rides he’s been on since December that he did not throw up. We’ve mentioned the car sickness to his GI doc multiple times but they basically ignore us and tell us to get him some stupid wrist bands. My point to them was that this car sickness was new and has to be a symptom of something and whatever that issue was, has apparently been corrected by the antibiotic.
Any of you ever experience anything like this or have any insight? This IBD is so stressful. All I do is worry about my son.
The antibiotics seemed to be the answer but we still don’t know what it was. I keep wondering if it was actually an inflammatory fever he was running and the swelling was a lymph node and related to his Crohn’s. His GI doc has referred him to rheumatology. His labs have been trending towards inflammation for several months but every time we ask about it they just sorta blow us off. I’m actually wondering if the Avsola isn’t working very well anymore but they did go up on his dosage to try and get his calprotectin down. His sedrate has been in the 30’s, his Crp up from less than 1 to a little over 5, his platelets up to around 400. While none of these are really bad they have been trending up for a while, and his albumin has been trending down.
A weird detail: In December he began getting car sick on the highway. He normally gets car sick on back roads but not on the highway. Since December, he’s thrown up every time he’s been in the car. He started the antibiotic on a Wednesday morning. The very next day he went to his pcp for a followup from the ER and he did not get car sick on the way there or back. Yesterday, he went for his infusion and did not get sick. These are the 1st car rides he’s been on since December that he did not throw up. We’ve mentioned the car sickness to his GI doc multiple times but they basically ignore us and tell us to get him some stupid wrist bands. My point to them was that this car sickness was new and has to be a symptom of something and whatever that issue was, has apparently been corrected by the antibiotic.
Any of you ever experience anything like this or have any insight? This IBD is so stressful. All I do is worry about my son.