Hello, I am a 48 year old male. I was diagnosed over 3 years ago with Chronic Ulcerative Colitis. I went online, studied about it and drove it into remission. I did this by diet, exersize, fluids, reducing stress, etc. It was in remission for about a year and about 6 months ago, just after the stress of my vehicle being stolen, it flared on me worse than ever, totally relentless. This time I turned anemic, I've lost weight from 130 lbs to 108 when I entered the hospital the first time to now I'm down to under 100 lbs. In addition to it this time I now also have Proctitis with the Colitis and I get this thing the doctor calls "Rectal Spasms". I call it dry heaves from the other end. It's where my body sort of takes control and tries to force out anything there may be in there even if there is nothing to force out at all. The pain is horrible. So I mentioned the hospital, I've been hospitalized twice in the past 3 months over this, the second time was for a 3 week period. I'm on Asacol 1600 mg per dose 3 times a day, Prednisone 40 mg once a day, Proctofoam 3 to 4 times a day and when I can get it in me, I'm supposed to do this suppository called Canasa 1000 mg before bed. But usually I am so inflamed I don't want to touch myself there much less be shouving something up there.
I'm also taking 4 mg of Dilaudid once a day, down from every 4 to 6 hours. And I take Tramadal to fill in during the day, those are for pain. I've been out of the hospital for about a month and a half now. At first I was feeling pretty good, now it's like half of my week is good, the other half is bad. I don't leave the house unless it's to go to the doctor or a desperate need for something important. I do wear briefs when I go out. Because I never know what is going to happen. And even sometimes that is not enough. I always need to know where the bathroom is. One day I had to walk from the pharmacy to the bank atm and while standing at the atm one of my episodes came up. This time explosive diarrhea, one small shop refused me to use their bathroom, stopped at jack in the box someone was using that one and someone was waiting, finally located one, but by then I needed a bath. I had to do a sink bath in that restroom. I've learned the items to carry in my diaper bag now. Wipes, briefs, wash cloth, extra clothing. In the past 3 to 4 months I've had probably 20 episodes of losing control of my bowels while out trying to do things. Unfortunately with my vehicle being stolen, now I have to take public transit everywhere. In San Diego if you need a laxative, take a bus somewhere.
The bus is sure to shake things up enough to get it out. They slam on the brakes, gun the engine, repeatedly over and over, by the time you get to your destination you better be looking for a restroom. This thing has become so exhausting and depressing. I'm now to the point of having lost so much weight I feel like I'm wasting away and now have to be careful of pressure sores when I sleep at night. Some days I just wish it would all end but I push forward. I don't have a support system here. So if anyone reading this happens to be in the San Diego area and would like to compare notes, be friends, just talk, please feel free to contact me. I'm currently not talking to my Mother who was really the only support system I had, she stresses me out too much, she does not understand that arguing and pressure and bullying does not help the condition. Anyway, hope this helps someone or finds someone or something. Thanks for reading.
I'm also taking 4 mg of Dilaudid once a day, down from every 4 to 6 hours. And I take Tramadal to fill in during the day, those are for pain. I've been out of the hospital for about a month and a half now. At first I was feeling pretty good, now it's like half of my week is good, the other half is bad. I don't leave the house unless it's to go to the doctor or a desperate need for something important. I do wear briefs when I go out. Because I never know what is going to happen. And even sometimes that is not enough. I always need to know where the bathroom is. One day I had to walk from the pharmacy to the bank atm and while standing at the atm one of my episodes came up. This time explosive diarrhea, one small shop refused me to use their bathroom, stopped at jack in the box someone was using that one and someone was waiting, finally located one, but by then I needed a bath. I had to do a sink bath in that restroom. I've learned the items to carry in my diaper bag now. Wipes, briefs, wash cloth, extra clothing. In the past 3 to 4 months I've had probably 20 episodes of losing control of my bowels while out trying to do things. Unfortunately with my vehicle being stolen, now I have to take public transit everywhere. In San Diego if you need a laxative, take a bus somewhere.
The bus is sure to shake things up enough to get it out. They slam on the brakes, gun the engine, repeatedly over and over, by the time you get to your destination you better be looking for a restroom. This thing has become so exhausting and depressing. I'm now to the point of having lost so much weight I feel like I'm wasting away and now have to be careful of pressure sores when I sleep at night. Some days I just wish it would all end but I push forward. I don't have a support system here. So if anyone reading this happens to be in the San Diego area and would like to compare notes, be friends, just talk, please feel free to contact me. I'm currently not talking to my Mother who was really the only support system I had, she stresses me out too much, she does not understand that arguing and pressure and bullying does not help the condition. Anyway, hope this helps someone or finds someone or something. Thanks for reading.
