just a little update 
I didn't really know where to put this, but I figured it was about time for an update!
History-Dx CD 10 years ago, v.little problem since then, the odd small dose of pred, but nothing major.
I was ill in december 2010 and the GP put me on pred 30mg. The consultant upped this to 40mg in January and a week later admitted me for 400mg IVs. This seemed to do the trick, but 2 weeks later I was in again. They could find little evidence of active CD and all my bloods were ok. Since then I have been weak and uncapable, permanently tired and just not right. I assumed down to inability to absorb.
I'm now onto consultant number 5 and I have answers
Apparently the IVs were at such a high dose-way above recommended for my body size and way more than necessary to treat a (relatively) moderate flare-that they have caused some damage within my body. He thinks my second admission was a reaction to the steroid rather than CD related. The upshot is, my muscle enzymes have been disabled and I have possible ME-certainly all the Sx of ME-just waiting for the results.
So I guess it's good I FINALLY have an answer, but also pretty bad that I'm in this situation due to inappropriate treatment.
A question- I've an appointment next week with the Doc who gave me the 400mg . . . do I go? What do I say? Should I take it further?
I didn't really know where to put this, but I figured it was about time for an update!
History-Dx CD 10 years ago, v.little problem since then, the odd small dose of pred, but nothing major.
I was ill in december 2010 and the GP put me on pred 30mg. The consultant upped this to 40mg in January and a week later admitted me for 400mg IVs. This seemed to do the trick, but 2 weeks later I was in again. They could find little evidence of active CD and all my bloods were ok. Since then I have been weak and uncapable, permanently tired and just not right. I assumed down to inability to absorb.
I'm now onto consultant number 5 and I have answers
Apparently the IVs were at such a high dose-way above recommended for my body size and way more than necessary to treat a (relatively) moderate flare-that they have caused some damage within my body. He thinks my second admission was a reaction to the steroid rather than CD related. The upshot is, my muscle enzymes have been disabled and I have possible ME-certainly all the Sx of ME-just waiting for the results.
So I guess it's good I FINALLY have an answer, but also pretty bad that I'm in this situation due to inappropriate treatment.
A question- I've an appointment next week with the Doc who gave me the 400mg . . . do I go? What do I say? Should I take it further?
