J
Jenni
Guest
kinda upset...
Hey guys I just wanted to share how I feel. I am running out of options. In the past year I have tried like every med in the book and none have worked for me. Asacol never worked because I was taking six a day, but I was passing them whole frequently so obviously they were not even dissolving in my system. They also contributed to me getting pancreatitus. So when I went into the hospital the first time, the drs argued about it some saying that asacol could cause pancreatitus and others said it couldnt. They dinally decided to take me off, but they started another ASA drug called Colazol. This did not set well with me because it is asacol in capsule form and they had me on 9 of those a day, and I even asked the dr. if Asacol caused me to get pancreatitus dont you think Colazol will to? and they were all nooo noo. well they let me out of the hospital after 8 days because they were havin problems with me and IVS. well about a week later, I began throwing everythign up again and they checked my levels which were higher than they had ever ever been before. So they took me off colazol and a while after the levels went back down. It sux,becuase the colazol had actually worked for me...but back to that later. They had also tried Canasa which is a supository and they made me do it twice a day, but it didnt work either. So they put me on 20 mgs of prednizone to stop the frequency and bleeding for the time beeing. But every time they would start to taper, I would get to 5 mgs(this has now happened like 5 times recently) and I would begin to bleed again. Well a few weeks ago I began having horrible diarrhea and bleeding like no tomorrow and the 20 mgs of prednizone had obviously lost the affect. Well the dr said we could try the Colazol again, so with some hesitation, I did. Well a few days later I felt so sick and I began yet again with Pancreatitus symptions, doubling over in pain and throwing up. So i spent that whole day in the hospital and luckily they didnt make me stay over night but at anyrate I knew I wouldnt be doing colazol again. SO the only option I had left was The Rawaissa Enema which I was NOT happy about at all. But I thoguht well if this works at least Ill have remission and itll be fine.Plus convincing from my boyfriend that I needed to help myself helped too. Well I did it and everynight as I layed there(u have to lay for at least 30 minutes afterwards) my stomach would hurt worse and worse. Well a couple nights ago my stomach seriously felt like it was exploding and I threw up and layed there holding my stomach alll nite. well I called the doctor who told me I couldnt take that anymore and they ,since Im not getting any better, Upped the prednizone to 40 mgs. I just went up and cried. I hate prednizone and even tho its the only thing that works idk I just hate it. My doctor does not want me to take it and niether does my family. Well the other problem is my parents say Im about an hour away from the hospital. I mean just in the last week and a half Ive lost some weight and Im gettin weaker...Well since Im on prednizone that could be a problem if I was hospitalized. I cant take it threw an iv because I had a horrible reaction to it in the hosptial. My whole arm swole up and my body turned red and I threw up to the poin that i threw up blood. I also had a reaction to morphine which Im not alowed to take anymore. SO with all that said I began thinkin about surgery the other day. And I think that could b a good option for me. I mean obviously my body hates medicine. but idk. I mean I am goin in next week to consult with my doctor so I guess I will have to wait and see wat she says. But at this point I just need new options. Because Prednizone is not what I consider a good one. But yeah just needed to write all that out.~Jen
Hey guys I just wanted to share how I feel. I am running out of options. In the past year I have tried like every med in the book and none have worked for me. Asacol never worked because I was taking six a day, but I was passing them whole frequently so obviously they were not even dissolving in my system. They also contributed to me getting pancreatitus. So when I went into the hospital the first time, the drs argued about it some saying that asacol could cause pancreatitus and others said it couldnt. They dinally decided to take me off, but they started another ASA drug called Colazol. This did not set well with me because it is asacol in capsule form and they had me on 9 of those a day, and I even asked the dr. if Asacol caused me to get pancreatitus dont you think Colazol will to? and they were all nooo noo. well they let me out of the hospital after 8 days because they were havin problems with me and IVS. well about a week later, I began throwing everythign up again and they checked my levels which were higher than they had ever ever been before. So they took me off colazol and a while after the levels went back down. It sux,becuase the colazol had actually worked for me...but back to that later. They had also tried Canasa which is a supository and they made me do it twice a day, but it didnt work either. So they put me on 20 mgs of prednizone to stop the frequency and bleeding for the time beeing. But every time they would start to taper, I would get to 5 mgs(this has now happened like 5 times recently) and I would begin to bleed again. Well a few weeks ago I began having horrible diarrhea and bleeding like no tomorrow and the 20 mgs of prednizone had obviously lost the affect. Well the dr said we could try the Colazol again, so with some hesitation, I did. Well a few days later I felt so sick and I began yet again with Pancreatitus symptions, doubling over in pain and throwing up. So i spent that whole day in the hospital and luckily they didnt make me stay over night but at anyrate I knew I wouldnt be doing colazol again. SO the only option I had left was The Rawaissa Enema which I was NOT happy about at all. But I thoguht well if this works at least Ill have remission and itll be fine.Plus convincing from my boyfriend that I needed to help myself helped too. Well I did it and everynight as I layed there(u have to lay for at least 30 minutes afterwards) my stomach would hurt worse and worse. Well a couple nights ago my stomach seriously felt like it was exploding and I threw up and layed there holding my stomach alll nite. well I called the doctor who told me I couldnt take that anymore and they ,since Im not getting any better, Upped the prednizone to 40 mgs. I just went up and cried. I hate prednizone and even tho its the only thing that works idk I just hate it. My doctor does not want me to take it and niether does my family. Well the other problem is my parents say Im about an hour away from the hospital. I mean just in the last week and a half Ive lost some weight and Im gettin weaker...Well since Im on prednizone that could be a problem if I was hospitalized. I cant take it threw an iv because I had a horrible reaction to it in the hosptial. My whole arm swole up and my body turned red and I threw up to the poin that i threw up blood. I also had a reaction to morphine which Im not alowed to take anymore. SO with all that said I began thinkin about surgery the other day. And I think that could b a good option for me. I mean obviously my body hates medicine. but idk. I mean I am goin in next week to consult with my doctor so I guess I will have to wait and see wat she says. But at this point I just need new options. Because Prednizone is not what I consider a good one. But yeah just needed to write all that out.~Jen