Hello,
I was wondering if any of you have any advice as I am really struggling at the moment! I don't have a diagnosis but am being treated for indeterminate IBD with Budesonide, Sulfasalazine, Mercaptopurine and multiple others for symptomatic relief.
Since a trial run of diclofenac Sept 14 (which is when I started the steroids again) I have been unable to tolerate any fruits or vegetables. I have tried everything from redoing my FODMAP diet (which has never helped) to juices, to changing the way they are cooked and everything in between with no joy. I cannot seem to get any of my Drs (3x different gastro, 1 x rheumo and an otherwise very helpful GP) to take me seriously when I express my concerns about my nutritional intake - all I get in return is that my weight has increased (thanks to the steroids, horrific diet and battle to do any exercise) and therefore I cannot have any issues - erm you can be fat like me and still be malnourished!!! I have tried 2 or 3 different over the counter multi vitamins (not ideal but better than nothing) but they all make my still unsettled gastro symptoms worse, and as I know you guys can all relate to this - when you live on that tightrope of functioning you don't want to fall off!
I really really just don't know what to do. I went to see a gastro dietician who said that there is nothing they can do to help, which has left me a bit stuck. Fatigue, joint pain and gastro tantrums are hard enough but I am certain that if I could eat a more balanced diet I would start to feel better, even if only that I could start to lose some weight.
Any help would be much appreciated! I used to use this awesome site all the time as I know you guys just get the frustrations - I just wish I had come back sooner.
Thanks for listening to my rant! I hope you are all well
I was wondering if any of you have any advice as I am really struggling at the moment! I don't have a diagnosis but am being treated for indeterminate IBD with Budesonide, Sulfasalazine, Mercaptopurine and multiple others for symptomatic relief.
Since a trial run of diclofenac Sept 14 (which is when I started the steroids again) I have been unable to tolerate any fruits or vegetables. I have tried everything from redoing my FODMAP diet (which has never helped) to juices, to changing the way they are cooked and everything in between with no joy. I cannot seem to get any of my Drs (3x different gastro, 1 x rheumo and an otherwise very helpful GP) to take me seriously when I express my concerns about my nutritional intake - all I get in return is that my weight has increased (thanks to the steroids, horrific diet and battle to do any exercise) and therefore I cannot have any issues - erm you can be fat like me and still be malnourished!!! I have tried 2 or 3 different over the counter multi vitamins (not ideal but better than nothing) but they all make my still unsettled gastro symptoms worse, and as I know you guys can all relate to this - when you live on that tightrope of functioning you don't want to fall off!
I really really just don't know what to do. I went to see a gastro dietician who said that there is nothing they can do to help, which has left me a bit stuck. Fatigue, joint pain and gastro tantrums are hard enough but I am certain that if I could eat a more balanced diet I would start to feel better, even if only that I could start to lose some weight.
Any help would be much appreciated! I used to use this awesome site all the time as I know you guys just get the frustrations - I just wish I had come back sooner.
Thanks for listening to my rant! I hope you are all well