soupdragon69
ele mental leprechaun
I went in for my remicade infusion today and the gastro nurse I dont get on with came to see me.
She told the staff not to make another appointment for my remicade. Told me she would be in touch at some point in relation to a plan.. great.. last iv and not on any other meds for my crohns.
She said they may look at Humira for me or come up with another plan but how long I wait for that she doesnt know. What am I supposed to do in the meantime?
Am a tad fed up tonight and a bit twitched that I now have no pharmaceutical backup for my crohns at all.
Even though I dont get complete relief the remicade has been the only drug that has improved me for about 3wks out of the 6 to feel I can live a reasonable life.
Its really thrown me this news today. I thought they would continue the infusions until I had the tests they want to do and can work out a direction to go in but no we stop now and I hope for the best that they sort this out before I really end up in a pickle! Grrrrr
She told the staff not to make another appointment for my remicade. Told me she would be in touch at some point in relation to a plan.. great.. last iv and not on any other meds for my crohns.
She said they may look at Humira for me or come up with another plan but how long I wait for that she doesnt know. What am I supposed to do in the meantime?
Am a tad fed up tonight and a bit twitched that I now have no pharmaceutical backup for my crohns at all.
Even though I dont get complete relief the remicade has been the only drug that has improved me for about 3wks out of the 6 to feel I can live a reasonable life.
Its really thrown me this news today. I thought they would continue the infusions until I had the tests they want to do and can work out a direction to go in but no we stop now and I hope for the best that they sort this out before I really end up in a pickle! Grrrrr