- Location
- UNITED KINGDOM
Well today went like all my other appointments, such a dissapointment
Ultrasound of gallbladder, kidneys and liver was normal.
CT scan of abdomen, chest and pelvis was normal- gutted, I really thought that would find it. :confused2:
When I brought up the black tarry stools and blood in stool on tp I was told one or two incidents of blood was normal and nothing to worry about
Stopping all meds today which is great since they were not working. Also told to stop multivitamin.
He suggested I lose 35kg before I see him next I know my weight is an issue but I can hardly go jogging round the block right now. Why I haven't lost any is a mystery to me let me tell you since I am barely eating and have constant D.
I asked again about the Pill Cam but the only way PCT will approve funding is if I am aneamic through a suspected small bowel bleed or colonoscopy biopsies had come back abnornmal.
I pressed the issue, would an iron supplement mask a bleed, he said probably not, but said he would be willing to do FBC again. I also had to push for the CRP to be done again, along with 2 other tests Rheumy wanted done. No stool sample requested- thinking of getting GP to do one for me.
He asked if I wanted an upper endoscopy, I said not really but think it should be done! Min 6 week wait. Will not diagnose CD even if they find ulcers-"anyone can have ulcers".Bowel bacteria test is in 2 weeks.
Saying I need to go away and accept everything is normal and he says i'm fine, apparently that will heal me and things will go away! And since I didn't cry this time (decided he is useless so no point in me getting upset) I seemed alot better!
Apparently I should accept the high CRP has no cause and is nothing to worry about.
Also referring me to the pain management clinic which even though there will be a long wait, is good. And sending me to St Guys in London to see a special dietician, he remembers a case at conference similar to mine which was solved by a special diet.
I am looking into having a Pill Cam done on a private basis but doubt I can afford it.
Meanwhile that is the last time I am seeing him. When we meet with the complaints service (in progress still), I will be asking to see another GI. As well as an independent review of my case by someone outside there, and special attention paid to the CT scan, as I can't believe that was normal.
No follow up appointment but he will "keep an eye on things".
Ultrasound of gallbladder, kidneys and liver was normal.
CT scan of abdomen, chest and pelvis was normal- gutted, I really thought that would find it. :confused2:
When I brought up the black tarry stools and blood in stool on tp I was told one or two incidents of blood was normal and nothing to worry about
Stopping all meds today which is great since they were not working. Also told to stop multivitamin.
He suggested I lose 35kg before I see him next I know my weight is an issue but I can hardly go jogging round the block right now. Why I haven't lost any is a mystery to me let me tell you since I am barely eating and have constant D.
I asked again about the Pill Cam but the only way PCT will approve funding is if I am aneamic through a suspected small bowel bleed or colonoscopy biopsies had come back abnornmal.
I pressed the issue, would an iron supplement mask a bleed, he said probably not, but said he would be willing to do FBC again. I also had to push for the CRP to be done again, along with 2 other tests Rheumy wanted done. No stool sample requested- thinking of getting GP to do one for me.
He asked if I wanted an upper endoscopy, I said not really but think it should be done! Min 6 week wait. Will not diagnose CD even if they find ulcers-"anyone can have ulcers".Bowel bacteria test is in 2 weeks.
Saying I need to go away and accept everything is normal and he says i'm fine, apparently that will heal me and things will go away! And since I didn't cry this time (decided he is useless so no point in me getting upset) I seemed alot better!
Apparently I should accept the high CRP has no cause and is nothing to worry about.
Also referring me to the pain management clinic which even though there will be a long wait, is good. And sending me to St Guys in London to see a special dietician, he remembers a case at conference similar to mine which was solved by a special diet.
I am looking into having a Pill Cam done on a private basis but doubt I can afford it.
Meanwhile that is the last time I am seeing him. When we meet with the complaints service (in progress still), I will be asking to see another GI. As well as an independent review of my case by someone outside there, and special attention paid to the CT scan, as I can't believe that was normal.
No follow up appointment but he will "keep an eye on things".