- Location
- Melbourne, Australia
Hi all,
I was recently sent to the Gastroenterology department at Alfred Hospital, Melbourne Australia, by my Gastro to get a second opinion on my stubborn Crohns before I start LDN.
Well to my surprise the Dr there told me that they have patients on LDN and they also have an option for Ibd patients to join a trial study of CCX282. They were so helpful and told me if I like I could join the trial of CCX and if it didn't work after 3 months I could take LDN through their clinic.
I just thought if any of you with Ibd in Australia are finding it hard to find a Dr that knows about LDN then maybe you could give the Alfred a call and ask for the Gastroenterology department ward B (clinical trials).
The Dr told me I could try LDN at any stage but the ccx trial is only open for a limited time before it closes. Apparently CCX works really well with a very limited side effect profile. The Dr said that if I started LDN and it didn't work for me then I couldn't start CCX because the trial would be closed so trying CCX first and then switching to LDN if CCX doesn't work would make more sense. Hope this information is helpful.
regards Michael
I was recently sent to the Gastroenterology department at Alfred Hospital, Melbourne Australia, by my Gastro to get a second opinion on my stubborn Crohns before I start LDN.
Well to my surprise the Dr there told me that they have patients on LDN and they also have an option for Ibd patients to join a trial study of CCX282. They were so helpful and told me if I like I could join the trial of CCX and if it didn't work after 3 months I could take LDN through their clinic.
I just thought if any of you with Ibd in Australia are finding it hard to find a Dr that knows about LDN then maybe you could give the Alfred a call and ask for the Gastroenterology department ward B (clinical trials).
The Dr told me I could try LDN at any stage but the ccx trial is only open for a limited time before it closes. Apparently CCX works really well with a very limited side effect profile. The Dr said that if I started LDN and it didn't work for me then I couldn't start CCX because the trial would be closed so trying CCX first and then switching to LDN if CCX doesn't work would make more sense. Hope this information is helpful.
regards Michael