Hey im new to this site though i have had been dealing with theses problems since age of 15 i never really spoke out about it but now i feel like i want to and be able to talk to others with these problems to well basically make me feel like im not alone with it all. (please excuses spelling and all that not my strong point)
When i was 5 i was diagnosed with autoimmune liver disease i was well cared for in Kings Collage Hospital in London, i don't remember much at all being that young but as you grown up you learn about it all more i had been taken tablets for it since could remember so that did not worry me as it was part of my daily routine.
I had really no problems until the age of 15 then i was diagnosed also with colitis and was just put on more tablets which controlled it well hardly any flair up's at all, then it all went down hill...
Come to the age of 19 and it all started going wrong i work full time and enjoy my work i was taken ill just after Christmas a year so back i had turned yellow and was in quite a bad state i was taken in to Kings Collage to have a procedure with would clear the bile ducks with in the liver, this did not go to plan i woke up in intensive care being told my liver had failed and i was bleeding from the heart, bit of a shock to be fair i was told i needed a liver transplant that was my only option i was taken straight to the top of the waiting list and lucky only had to wait 4 days for one to pop up the operation went well and i recovered quickly was back at work with in 6 months, all had been well had little bit of iffy time they had do tests on the liver but it had done me well and i was counting my lucky stars i was alive and very thankful to the staff and the family who deiced to let the organs of there son go to save other peoples life's. So brings me to where i am now i was doing really well then all of a sudden the colitis poped back up to spoil the party, went back to Kings Collage for tests and see what they do they are now treating it as Crohn's i have been put onto new tablets which are Mesavancol and Questran sadly im not seeing any improvement and its effecting me quite a bit i still mange to work full time but that is it im 21 now and all i do is sleep and work dont go out see friends or soiclise cause of the effects of Crohn's (needing the toilet pretty fast at times) and its starting to get to me doctor has spoken about the next step which is the iv drip or the injections due back up the hospital next month to see what is the next move i just hope something works i want go back to being a 21 year old okay i dont drink etc but i enjoy going out meeting new people and just living my life which i dont seem to be able to do at the moment.
Well that's pretty much it i have read some bits on here and its helped going start a food diary and see if there anything that makes it worst or not i do anything to have this controlled to get my life back.
Once again sorry for lack of spelling etc
Thanks
Zac
When i was 5 i was diagnosed with autoimmune liver disease i was well cared for in Kings Collage Hospital in London, i don't remember much at all being that young but as you grown up you learn about it all more i had been taken tablets for it since could remember so that did not worry me as it was part of my daily routine.
I had really no problems until the age of 15 then i was diagnosed also with colitis and was just put on more tablets which controlled it well hardly any flair up's at all, then it all went down hill...
Come to the age of 19 and it all started going wrong i work full time and enjoy my work i was taken ill just after Christmas a year so back i had turned yellow and was in quite a bad state i was taken in to Kings Collage to have a procedure with would clear the bile ducks with in the liver, this did not go to plan i woke up in intensive care being told my liver had failed and i was bleeding from the heart, bit of a shock to be fair i was told i needed a liver transplant that was my only option i was taken straight to the top of the waiting list and lucky only had to wait 4 days for one to pop up the operation went well and i recovered quickly was back at work with in 6 months, all had been well had little bit of iffy time they had do tests on the liver but it had done me well and i was counting my lucky stars i was alive and very thankful to the staff and the family who deiced to let the organs of there son go to save other peoples life's. So brings me to where i am now i was doing really well then all of a sudden the colitis poped back up to spoil the party, went back to Kings Collage for tests and see what they do they are now treating it as Crohn's i have been put onto new tablets which are Mesavancol and Questran sadly im not seeing any improvement and its effecting me quite a bit i still mange to work full time but that is it im 21 now and all i do is sleep and work dont go out see friends or soiclise cause of the effects of Crohn's (needing the toilet pretty fast at times) and its starting to get to me doctor has spoken about the next step which is the iv drip or the injections due back up the hospital next month to see what is the next move i just hope something works i want go back to being a 21 year old okay i dont drink etc but i enjoy going out meeting new people and just living my life which i dont seem to be able to do at the moment.
Well that's pretty much it i have read some bits on here and its helped going start a food diary and see if there anything that makes it worst or not i do anything to have this controlled to get my life back.
Once again sorry for lack of spelling etc
Thanks
Zac
