Hello I am kind of new to this site.
Things just seem to be getting worse and worse in the area of this crohns business. recently I was referred to the university of Michigan in hopes to get some light shed on my rectovaginal, perianal fistuals. I was scheduled to have a seton or two put in to relieve the pressure and drainage. I was put under and the surgeon went in and couldn't get past my anus because of all of the inflammation. so I had a dilation done and from what I am getting from it there were too many fistulae tracks to be able to put a seton or two in.
to try and shorten this with all of the inflammation in my anus/rectum, sigmoid, and ileum I am left with the decision to get a permanent ileostomy or wait 2 to 3 months to get my latent tb checked out and try remicade again which doesn't sound very hopeful. dr. said it would be about a 30% chance the remicade would work.
I'm leaning towards going for the ileostomy. I have 2 kids ages 5 and 6. I need to keep up with and cant do that sitting in the bathroom in pain. my life revolves around the porcelain throne, pain meds, and lots of pain.
I know I have missed a lot of past things like medications. all past medications have failed and I've been on everything. also have already had 2 surgeries the last one being 3 years ago.
any input from people that have ileostomies or any input on a similar situation would be great to talk to. I have so much going on in my head right now that some conversation with my normalcy would be great. THanks!
Things just seem to be getting worse and worse in the area of this crohns business. recently I was referred to the university of Michigan in hopes to get some light shed on my rectovaginal, perianal fistuals. I was scheduled to have a seton or two put in to relieve the pressure and drainage. I was put under and the surgeon went in and couldn't get past my anus because of all of the inflammation. so I had a dilation done and from what I am getting from it there were too many fistulae tracks to be able to put a seton or two in.
to try and shorten this with all of the inflammation in my anus/rectum, sigmoid, and ileum I am left with the decision to get a permanent ileostomy or wait 2 to 3 months to get my latent tb checked out and try remicade again which doesn't sound very hopeful. dr. said it would be about a 30% chance the remicade would work.
I'm leaning towards going for the ileostomy. I have 2 kids ages 5 and 6. I need to keep up with and cant do that sitting in the bathroom in pain. my life revolves around the porcelain throne, pain meds, and lots of pain.
I know I have missed a lot of past things like medications. all past medications have failed and I've been on everything. also have already had 2 surgeries the last one being 3 years ago.
any input from people that have ileostomies or any input on a similar situation would be great to talk to. I have so much going on in my head right now that some conversation with my normalcy would be great. THanks!