Hello! I am new to this group and am excited to be able to talk to others who have Crohn's.
I am 39 and was diagnosed with CD in 2007. Currently taking 4000 mg Pentasa a day. Recently tried Prednisone. It seemed to help with cramping, but I injured my back during both Prednisone treatments. I don't think this was a coincidence as I have never injured my back before.
The doctor has talked to me about many prescriptions but I am nervous because of the side effects. I finally agreed to Prednisone after 4 years of my GI encouraging me. I will never take it again.
I am taking Narco for pain and something for depression/anxiety. But, these pills are doing nothing to help calm my flare ups. They are just helping me get by everyday. Which I hate. I really prefer natural alternative methods, but have hit a point where I am desperate.
I have been in a constant state of flare for over 12 months. The severity goes from moderately uncomfortable to extreme pain. Have started getting joint pain and the fatigue is getting worse. Although, the Prednisone did a good job of keeping me awake for days.
If you can share with me what you are taking to help with cramping and pain - and what side effects you have. Also, anyone who has suggestions on how to manage joint pain would be great.
I have three children and struggle to keep up with them. I have not worked in 4 years. My youngest child is 2 and our plan was to have me back to work by now - but my husband already misses work to help take care of me and the kids. I would feel really bad for the company that hired me. I use to be a high energy, high performer and self starter. CD has erased these words from my resume.
I have applied for Disability. I was denied immediately and appeal my case in front of a judge next month. I have a rep to help me, who will get paid if I get approved. I hate the amount of stress this process has caused. But, the approval would help tremendously.
Not sure how successful I will be considering my GI doc has basically told me that there is a level of pain and discomfort that CD patients have to live with. Not very encouraging. As I write this I think maybe I should be looking for a new doc?!
I look forward to participating in this group - thank you for being here!!
I am 39 and was diagnosed with CD in 2007. Currently taking 4000 mg Pentasa a day. Recently tried Prednisone. It seemed to help with cramping, but I injured my back during both Prednisone treatments. I don't think this was a coincidence as I have never injured my back before.
The doctor has talked to me about many prescriptions but I am nervous because of the side effects. I finally agreed to Prednisone after 4 years of my GI encouraging me. I will never take it again.
I am taking Narco for pain and something for depression/anxiety. But, these pills are doing nothing to help calm my flare ups. They are just helping me get by everyday. Which I hate. I really prefer natural alternative methods, but have hit a point where I am desperate.
I have been in a constant state of flare for over 12 months. The severity goes from moderately uncomfortable to extreme pain. Have started getting joint pain and the fatigue is getting worse. Although, the Prednisone did a good job of keeping me awake for days.
If you can share with me what you are taking to help with cramping and pain - and what side effects you have. Also, anyone who has suggestions on how to manage joint pain would be great.
I have three children and struggle to keep up with them. I have not worked in 4 years. My youngest child is 2 and our plan was to have me back to work by now - but my husband already misses work to help take care of me and the kids. I would feel really bad for the company that hired me. I use to be a high energy, high performer and self starter. CD has erased these words from my resume.
I have applied for Disability. I was denied immediately and appeal my case in front of a judge next month. I have a rep to help me, who will get paid if I get approved. I hate the amount of stress this process has caused. But, the approval would help tremendously.
Not sure how successful I will be considering my GI doc has basically told me that there is a level of pain and discomfort that CD patients have to live with. Not very encouraging. As I write this I think maybe I should be looking for a new doc?!
I look forward to participating in this group - thank you for being here!!