- Location
- Detroit, MI
I realize I am having a VERY high class issue here but I appreciate thoughts.
After 5 years of battling Crohn's disease my colonoscopy is showing that I am in remission! After years of hair loss, and 8 hour stretches of vomiting out both ends, bloody stool, arthritis, harsh medications, hair loss, crazy lesions on my shins and ankles, horrible labs -- you all know the struggle. Its rough. And even in this great state I still have lingering random auto-immune related issues like flathead warts on my hands and sore joints. You all know that working towards being healthy can be torturous when you feel like you're yo-yoing back and forth from healthy to flared even though your diet, supplements, medication, sleep, and exercise are all completely on point. I loved my doctor who saw me through the roughest years. She knew how proactive I was about getting well. But now my (first year intern) doctor has sent me a letter in response to my colonoscopy that she thinks I never had Crohns disease because my colon looks healthy.
I am THRILLED that I am looking healthy. Let me not sound ungrateful. Its a complete 180 from my last colonoscopy. But. This young doctor who wasn't here when I was 30 pounds underweight and covered in ulcers and just trying to stay awake through a work day is totally effing with my mind. Its incredibly invalidating of my experience to flippantly say she thinks I never had Crohns. I was sick for YEARS before I was diagnosed and the 3-4 years after my diagnosis were hell. I have been hospitalized many times. If she truly thinks Crohns was the wrong diagnosis that is something to have a serious in person conversation about with an attending.
I have an appointment on Thursday and I'm thinking about what I need to say to her to help her understand that this letter was not ok. Any advice? Am I overreacting?
After 5 years of battling Crohn's disease my colonoscopy is showing that I am in remission! After years of hair loss, and 8 hour stretches of vomiting out both ends, bloody stool, arthritis, harsh medications, hair loss, crazy lesions on my shins and ankles, horrible labs -- you all know the struggle. Its rough. And even in this great state I still have lingering random auto-immune related issues like flathead warts on my hands and sore joints. You all know that working towards being healthy can be torturous when you feel like you're yo-yoing back and forth from healthy to flared even though your diet, supplements, medication, sleep, and exercise are all completely on point. I loved my doctor who saw me through the roughest years. She knew how proactive I was about getting well. But now my (first year intern) doctor has sent me a letter in response to my colonoscopy that she thinks I never had Crohns disease because my colon looks healthy.
I am THRILLED that I am looking healthy. Let me not sound ungrateful. Its a complete 180 from my last colonoscopy. But. This young doctor who wasn't here when I was 30 pounds underweight and covered in ulcers and just trying to stay awake through a work day is totally effing with my mind. Its incredibly invalidating of my experience to flippantly say she thinks I never had Crohns. I was sick for YEARS before I was diagnosed and the 3-4 years after my diagnosis were hell. I have been hospitalized many times. If she truly thinks Crohns was the wrong diagnosis that is something to have a serious in person conversation about with an attending.
I have an appointment on Thursday and I'm thinking about what I need to say to her to help her understand that this letter was not ok. Any advice? Am I overreacting?