Hi there. My 15 yr old son was dx'd nov 2009 with Crohn's . He has been in utter agony for months. He lost 65 pounds and has been through H*** the past 2 yrs. (The dr's dismissed his stomach pains, recurring fistulas, bowel issues and fatigue. They even said "good job" on losing weight. Finally I planted myself in the office and said i wasn't leaving until Igot a referral because I knew something was wrong with my child- not just single incidents of whatever symptom was occuring ) He has been on several oral meds and spent a week getting iv meds and steroids. Currently he is in intense pain after eating. So he either starves, vomits after eating or eats and curls in a ball moaning after. I am so upset- to see him suffer is horrible. My question is- are any of you who suffer from Crohn's on pain meds? I understand the risks and concerns of pain meds- but slowing down his bowels sounds like it would help with his diareah (sp) and the few times he was given pain meds in the hospital it was great- his pain went away and he could get up and do things. His quality of life is diminished- he is not in school, losing touch with friends and feels awful- he does not want to live with the hunger or the severe pain. He is a tough kid and generally has a high pain tolerance so I believe how bad this pain must be to be keeping him this way.
Any advice for pain relief? Things or meds that work ?(we have tried every diet change we read or heard about) I dont think it fair he should be made to suffer when pain med is available. I worry for his mental health- he says he will hang on and keep trying new meds and new Drs but he will not live like this forever.
Sorry to blurt out all this but if anyone can help I believe it will be you guys who have experience and live with the same things he does. Thank you so much for any help you can give me. I am just at my wits end and so, so frustrated.
Any advice for pain relief? Things or meds that work ?(we have tried every diet change we read or heard about) I dont think it fair he should be made to suffer when pain med is available. I worry for his mental health- he says he will hang on and keep trying new meds and new Drs but he will not live like this forever.
Sorry to blurt out all this but if anyone can help I believe it will be you guys who have experience and live with the same things he does. Thank you so much for any help you can give me. I am just at my wits end and so, so frustrated.